加拿大安大略省西南部多发性硬化症女性患者的健康和福祉障碍。

Q3 Nursing Nursing Pub Date : 2024-10-01 Epub Date: 2024-09-20 DOI:10.1097/NSG.0000000000000076
Jennifer Collins, Yolanda Babenko-Mould, Kimberley T Jackson, Tracy Smith-Carrier
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引用次数: 0

摘要

目的:本研究探讨了多发性硬化症(MS)女性患者的生活经历,并找出了影响她们获得最佳健康和福祉的障碍:研究人员采用 van Manen 的解释性现象学分析方法,对加拿大安大略省西南部 23 名确诊为多发性硬化症的女性进行了半结构式访谈。使用 NVivo 12 软件对数据进行分析,并通过成员检查对主题进行验证:研究揭示了 "多发性硬化症女性患者的障碍 "这一关键主题,以及与生理、心理和社会福祉障碍相关的次主题。参与者报告称,尽管她们被诊断出患有多发性硬化症,但仍能体验到健康的感觉,但她们也指出了影响其最佳健康和福祉的各种限制因素,包括就业、经济支持和住房保障方面的挑战:研究结果强调,医疗保健专业人员有必要倡导为多发性硬化症女性患者提供公平的治疗、药物和无障碍支持,并制定政策,解决残疾人收入支持和经济适用房问题。建议开展进一步研究,探讨就业不稳定或患有偶发性残疾的多发性硬化症女性患者所经历的权力失衡问题。
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Barriers to the health and well-being of women with multiple sclerosis in Southwestern Ontario, Canada.

Purpose: This study explores the lived experiences of women living with multiple sclerosis (MS) and identifies barriers to their optimal health and well-being.

Methodology: Using van Manen's interpretative phenomenologic analysis, the researchers conducted semistructured interviews with 23 women diagnosed with MS in Southwestern Ontario, Canada. Data were analyzed using NVivo 12 software, and themes were validated through member checking.

Results: The study revealed a key theme of "obstacles for women with MS" and subthemes related to barriers to physical, mental, and social well-being. Participants reported experiencing feelings of health despite their MS diagnosis but identified various constraints on their optimal health and well-being, including challenges with employment, financial support, and housing security.

Conclusion: The findings highlight the need for healthcare professionals to advocate for equitable treatments, medication, and accessibility supports for women with MS, as well as for policies that address disability income support and affordable housing. Further research is recommended to explore power imbalances experienced by women with MS in precarious employment situations or living with episodic disabilities.

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来源期刊
Nursing
Nursing Medicine-Medicine (all)
CiteScore
0.80
自引率
0.00%
发文量
338
期刊介绍: Nursing2020 (ISSN 0360-4039; online ISSN 1538-8689) published its first issue in November 1971, under founders Gene W. Jackson and Daniel Cheney. In the intervening years, its circulation has grown to over 150,000, making it one of the largest nursing journals in the world. Published monthly, Nursing2020 is widely regarded as offering current, practical contents to its readers, and has won many editorial awards testifying to the quality of its copy and graphics. The editorial and clinical staff, a 19-member Editorial Board of distinguished clinicians and practitioners, and over 100 invited reviewers help ensure the quality of this publication.
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