Cristina Alfaro-Diaz , Nuria Esandi , Anne Møller Clausen , Navidad Canga-Armayor , María Pueyo-Garrigues , Karin B. Dieperink
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引用次数: 0
摘要
目的确定评估成年癌症患者家庭功能的工具，并总结其心理测量特性：使用四个数据库进行心理测量系统文献综述（截至 2023 年 6 月）：PubMed、CINAHL、Psych INFO 和 Web of Science。采用基于共识的健康测量工具选择标准（COSMIN）检查表对工具的心理测量特性和研究的方法学质量进行了评估。采用建议、评估、发展和评价分级法（GRADE）对现有最佳证据进行评级：结果：共纳入了 44 项研究，报告了 13 种工具。这些工具测量了家庭功能的不同属性，其维度也不尽相同。癌症患者及家属沟通评估工具（CCAT-PF）在方法严谨性和工具质量方面都被评为最高。然而，家庭适应性和凝聚力评估量表（FACES）和冰-表达式家庭功能问卷（ICE-EFFQ）能更全面地评估家庭功能，因为它们能评估家庭功能的多个维度，并显示出高质量的测量特性：评估家庭功能的工具多种多样，可靠性和有效性有限。FACES和ICE-EFFQ似乎是最适合成年癌症患者及其家庭的测量工具。未来的研究应旨在完善现有工具的内容，并严格评估其心理测量特性：鉴于癌症对家庭功能的深远影响，制定有效干预措施的第一步就是提供有效可靠的工具来衡量这些干预措施的影响。本文可帮助护理专业人员做出明智的决定，选择最合适的工具来评估癌症等危及生命疾病的成年患者的家庭功能。
Instruments for Assessing Family Functioning in Adults Patients with Cancer: A Systematic Review of Measurement Properties
Objectives
To identify instruments for assessing family functioning in adults patients with cancer and summarize their psychometric properties.
Methods
Psychometric systematic literature review was conducted to June 2023 using four databases: PubMed, CINAHL, Psych INFO, and Web of Science. The psychometric properties of the instruments and the methodological quality of the studies were evaluated using the Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) checklist. The Grading of Recommendations, Assessment, Development and Evaluation (GRADE) was used to rate the best available evidence.
Results
Forty-four studies reporting 13 instruments were included. The instruments measured varied attributes of family functioning and the dimensions were heterogeneous. The Cancer Communication Assessment Tool for Patients and Families (CCAT-PF) was rated the highest in terms of both methodological rigor and instrument quality. However, the Family Adaptability and Cohesion Evaluation Scale (FACES) and the Ice-Expressive Family Functioning Questionnaire (ICE-EFFQ) offer a more comprehensive measure of family functioning, since they assess multiple dimensions of family functioning and demonstrate high-quality measurement properties.
Conclusions
Instruments to assess family functioning were heterogeneous and exhibited limited reliability and validity. The FACES and the ICE-EFFQ seem to be the most suitable measures for adult cancer patients and their families. Future research should aim to refine the content of existing instruments and rigorously assess their psychometric properties.
Implications for Nursing Practice
Given the profound impact of cancer on family functioning, the initial step in crafting effective interventions is providing valid and reliable instruments to measure the impact of these interventions. This paper could assist nursing professionals in making informed decisions regarding the most suitable instrument for assessing family functioning in adults patients living with life-threatening illness as is the case with cancer.
期刊介绍：
Seminars in Oncology Nursing is a unique international journal published six times a year. Each issue offers a multi-faceted overview of a single cancer topic from a selection of expert review articles and disseminates oncology nursing research relevant to patient care, nursing education, management, and policy development.
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