是什么提高了死亡和临终的质量?癌症晚期患者的观点。

Maria Wajid, Eslavath Rajkumar, John Romate
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摘要

目的:本研究旨在从生命即将终结的癌症患者的角度,确定哪些因素可以提高死亡和濒死的质量。目的是了解他们认为什么是美好死亡的必要条件,以及他们希望在生命的最后阶段得到怎样的照顾和支持:本研究采用探索性研究方法。方法:本研究采用了探索性研究方法,从印度班加罗尔和海德拉巴的两家临终关怀机构(卡鲁纳什拉亚和斯巴什)以及班加罗尔的卡纳塔克癌症医院中选择了 21 名参与者。通过半结构式访谈从病人那里获取数据。结果:结果:确定了四个主题:1) 精神和宗教信仰;2) 社会情感支持;3) 打破对疾病阶段的沉默;4) 为死亡做准备并拥抱死亡。在其中一些主题中,还存在着明显的次主题,并通过引用参与者的话进行了强调:这项研究让我们对生命末期护理、高质量生命末期的标准、实现高质量生命末期的策略以及晚期癌症患者的死亡过程和死亡质量有了全面的了解。研究患者的经历将有助于制定更有力的干预策略和行动计划,以提高印度社区的临终关怀质量。
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What enhances the quality of death and dying? A perspective from patients with terminal cancer.

Aim: This study aimed to determine which factors improve the quality of dying and death from the point of view of patients with cancer who are nearing the end of their lives. The goal was to find out what they think are necessary conditions for a good death and how they would like to be cared for and supported at the end of their lives.

Methods: This study used an exploratory research approach. Purposive sampling was used to select 21 participants from two hospices in Bengaluru and Hyderabad (Karunashraya and Sparsh), and Karnataka Cancer Hospital in Bangalore, India. Semi-structured interviews were undertaken to obtain data from the patients. Thematic analysis was used to examine the data.

Results: Four themes were identified: 1) Spirituality and religiosity, 2) socioemotional support, 3) Breaking silence about the stage of the disease and 4) Preparation for and embracing death. There were distinct sub-themes within some of these that were highlighted using quotes from the participants.

Conclusions: The study provided a comprehensive understanding of end-of-life care, the criteria for a high-quality end of life, strategies for achieving it, and the quality of the dying process and death in advanced cancer patients. Studying patients' experiences will help inform a more robust intervention strategy and action plan to improve the quality of end-of-life care in the Indian community.

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