意大利语版帕金森病护理者负担问卷 (PDCB-I) 的翻译、跨文化改编和验证。

Sara Gherardini, Elena Porri, Matilde Dugini, Valentina Santoro, Matteo Paci
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摘要

背景:目的:将帕金森病护理者负担问卷(PDBC)翻译成意大利语并进行跨文化改编,评估意大利语版本在测试-再测信度、内部一致性和建构效度方面的心理测量特性:方法:PDBC-I 是通过前向-后向翻译编制的,目的是与原始的英文最新版本建立对应关系。对帕金森病患者主要照顾者样本的心理测量特性进行了评估。可靠性测试包括内部一致性(Cronbach's alpha)、测试-再测可靠性(ICC)、测量标准误差(SEM)和最小可检测变化(MDC),也以百分比(MDC%)表示。通过将 PDBC -I 与照顾者负担量表 (CBI) 和 SF-36 短表 (SF-36) 进行比较(皮尔逊相关系数),对有效性进行了评估:对 65 名护理人员进行了问卷调查,结果显示内部一致性为 0.934。测试-再测可靠性的 ICC 值为 0.811(95% CI 0.708-0.880),SEM 和 MDC(MDC%)分别为 5.04 和 13.97(38.21%)。与所有其他调查量表(CBI:r=0.693;SF-36 体力评分:r=-0.309;SF-36 精神评分:r=-0.588;SF36 总分:-0.470)的相关性为中低:尽管 PDCB-I 具有可接受的心理测量特性,可用于意大利语国家的临床环境中,作为帕金森病患者照顾者照顾负担的测量方法,但照顾者可能需要临床医生的支持才能完成问卷的编制。
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Translation, cross-cultural adaptation, and validation of the Italian version of the Parkinson's disease caregiver burden questionnaire (PDCB-I).

Background: To translate and cross-culturally adapt the Parkinson's Disease Caregiver Burden questionnaire (PDBC) into Italian language and to evaluate the psychometric properties of the Italian version in terms of test-retest reliability, internal consistency, and construct validity.

Methods: The PDBC-I was developed by forward-backward translation to establish correspondence with the original English latest version. Psychometric properties were estimated in a sample of primary caregivers of individuals with Parkinson's disease. Reliability testing included internal consistency (Cronbach's alpha), test-retest reliability (ICC), the standard error of measurement (SEM) and the minimal detectable change (MDC), also expressed as percentage (MDC%). Validity was estimated by comparing the PDBC -I to the Caregiver Burden Inventory (CBI) and the Short Form 36 (SF-36) (Pearson correlation coefficient).

Results: The questionnaire was administered to 65 caregivers, showing internal consistency of 0.934. ICC value was 0.811 (95% CI 0.708-0.880) for test-retest reliability, and the SEM and the MDC (MDC%) were 5.04 and 13.97 (38.21%), respectively. Low to moderate correlation with all other investigated scales (CBI: r=0.693; SF-36 physical score: r=-0.309; SF-36 mental score: r=-0.588; SF36 total score: -0.470) were found.

Conclusions: Despite the PDCB-I holds acceptable psychometric properties to be used in clinical settings of Italian-speaking Countries as a measure of caregiver burden in caregivers of individuals with Parkinson Disease, the caregiver might require the support of a clinician to finalize the compilation of the questionnaire.

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