通过对新西兰奥特亚罗瓦地区性别确认激素疗法的前瞻性队列研究收集数据的优先事项:社区和临床观点。

IF 1.1 Q4 PRIMARY HEALTH CARE Journal of primary health care Pub Date : 2024-09-01 DOI:10.1071/HC23170
Rona Carroll, Sally B Rose, Alex Ker, Michaela A Pettie, Susan M Garrett
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引用次数: 0

摘要

导言:对于许多变性人和非二元性(TNB)人群来说,性别肯定激素疗法(GAHT)是医疗保健的一个重要方面,但人们对新西兰奥特亚罗瓦地区(NZ)变性人和非二元性人群的长期治疗效果知之甚少。接受变性治疗的途径正在从二级医疗转向初级医疗,因此,现在正是开始对接受变性治疗者的长期健康和福利结果进行本地研究的大好时机。目的 本文旨在报告四次会议的主要结论,这些会议为设计前瞻性队列研究提供了信息,该研究将跟踪新西兰初级和二级医疗机构中开始接受 GAHT 治疗的患者的治疗过程。方法 我们与一个由六名 TNB 年轻人组成的社区咨询小组合作,并向 14 名参与 TNB 患者 GAHT 治疗的医疗服务提供者(全科医生、二级护理医生和心理健康服务提供者)征求意见。采用半结构式访谈表来指导讨论。根据访谈表中确定的主题,采用模板分析法对数据进行初步编码,并在讨论中添加新的主题。结果 参与者就基线调查和后续调查的招募和数据收集重点交流了看法。其中包括了解开始荷尔蒙疗法的历程(信息寻求、决策)、开始接受 GAHT 的服务途径、信息提供的适当性、收到第一张处方、GAHT 的目标和体验,以及非二元人群的独特需求。讨论 TNB咨询小组和医疗保健专业人员的意见为制定一项调查提供了参考,该调查将用于了解在新西兰开始接受GAHT治疗的人的经历和结果。这项计划中的前瞻性队列研究的结果有可能改善希望接受GAHT治疗的TNB患者的就医情况。
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Priorities for data collection through a prospective cohort study on gender-affirming hormone therapy in Aotearoa New Zealand: community and clinical perspectives.

Introduction Gender affirming hormone therapy (GAHT) is an important aspect of health care for many transgender and non-binary (TNB) people, but little is known about the long-term outcomes for TNB people in Aotearoa New Zealand (NZ). Pathways to access GAHT are shifting from secondary care towards primary care, so this is an opportune time to commence local research on long-term health and wellbeing outcomes for people initiating GAHT. Aim This paper aims to report on the key findings from four meetings held to inform the design of a prospective cohort study to follow the journey of people initiating GAHT in primary and secondary care settings in NZ. Methods We worked with a community advisory group of six TNB young people and sought input from 14 health care providers involved in the care of TNB people initiating GAHT (GPs, secondary care doctors, and mental health providers). Semi-structured interview schedules were used to guide discussions. Template analysis was used to initially code data based on themes identified from the interview schedule and new themes from discussions were added. Results Participants shared ideas about recruitment and data collection priorities for baseline and follow-up surveys. These included understanding the journey to starting hormone therapy (information-seeking, decision-making), access to services for GAHT initiation, appropriateness of information provision, receipt of the first prescription, goals for and experience of GAHT, and the unique needs of non-binary people. Discussion Input from a TNB advisory group and health care professionals has informed the development of a survey that will be used to understand the experience of, and outcomes for, people starting GAHT in NZ. Findings from this planned prospective cohort study have the potential to improve access to GAHT for TNB people who wish to pursue this option.

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来源期刊
Journal of primary health care
Journal of primary health care PRIMARY HEALTH CARE-
CiteScore
2.70
自引率
16.70%
发文量
79
审稿时长
28 weeks
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