一个好的结局,但不是终结":探索围绕亲属死亡和来世的家庭准备工作--一项定性研究。

IF 3.6 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Palliative Medicine Pub Date : 2024-09-27 DOI:10.1177/02692163241280016
Hui-Ju Liang, Qian Xiong, Peng-Chan Lin, Jui-Hung Tsai, Nancy Preston
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引用次数: 0

摘要

背景:充分的死亡准备对家属在死亡前和丧亲期间的经历有着积极的影响。然而,在非西方文化中,如何为家属做好准备却很少受到关注。目的:探讨台湾专科姑息关怀中家属照护者为亲属死亡做准备的经验:设计:对半结构式访谈中收集到的数据进行反思性主题分析,开展定性研究:环境/参与者:来自七家医院的22名家属照护者参与:总的主题是 "做好一切,让生死之间不留遗憾"。我们提出了两个主题来解释死亡前后的准备工作,包括逝者的来世:(1)"有一个好的结局,但不是关系的终结",涉及死亡本身、葬礼、来世和保持联系的准备工作;(2)"用宗教信仰和文化规范指导准备工作",探讨对好的死亡的看法,包括在死亡前后避免强烈的情绪:葬礼安排、改善逝者的来世以及保持与逝者的联系对家属的经历至关重要,而家属在为死亡做准备时所采取的行动可能会对这些经历产生影响。与文化相适应的死亡方式对临终亲属是有益的,这包括做好准备,在死亡期间和之后不表现出强烈的情绪。这些见解说明了文化背景在台湾死亡准备中的重要性,并为姑息关怀提供了超越西方文化的视角,有可能惠及以东亚和佛教社会为主的华人群体。
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'A good ending but not the end': Exploring family preparations surrounding a relative's death and the Afterlife - A qualitative study.

Background: Adequate death preparation positively influences families' experience before death and during bereavement. However, how to prepare families in non-Western cultures has received scant attention.

Aim: To explore family caregivers' experiences in preparing for a relative's death in specialist palliative care in Taiwan.

Design: A qualitative study employing reflexive thematic analysis of data collected from semi-structured interviews was conducted.

Setting/participants: Twenty-two family caregivers from seven hospitals participated.

Results: The overarching theme was 'getting everything right to have no regrets between the dead and the living'. We developed two themes to explain preparations for the time surrounding and after the death, including the deceased' afterlife: (1) 'having a good ending but not the end of the relationship', which addresses preparations for the death itself, the funeral, the afterlife and maintaining connections and (2) 'using religious beliefs and cultural norms to guide preparation', which explores perceptions of a good death, including refrain from strong emotions before and after the death.

Conclusion: Funeral arrangements, enhancing the deceased's afterlife and maintaining connections to the deceased are crucial for families' experiences which can be impacted by actions they take as they prepare for the death. A culturally appropriate death is beneficial for the dying relative which includes preparing to not show strong emotions during and after the death. These insights inform the importance of the cultural context in death preparation in Taiwan and provide perspectives for palliative care beyond Western culture, potentially benefiting Chinese populations, predominantly East Asian and Buddhist societies.

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来源期刊
Palliative Medicine
Palliative Medicine 医学-公共卫生、环境卫生与职业卫生
CiteScore
7.60
自引率
9.10%
发文量
125
审稿时长
6-12 weeks
期刊介绍: Palliative Medicine is a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. This outstanding journal features editorials, original papers, review articles, case reports, correspondence and book reviews. Essential reading for all members of the palliative care team. This journal is a member of the Committee on Publication Ethics (COPE).
期刊最新文献
Utilizing intricate care networks: An ethnography of patients and families navigating palliative care in a resource-limited setting. Definition and recommendations of advance care planning: A Delphi study in five Asian sectors. Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review. A pragmatic approach to selecting a grading system for clinical practice recommendations in palliative care. 'A good ending but not the end': Exploring family preparations surrounding a relative's death and the Afterlife - A qualitative study.
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