澳大利亚的产前检测技术:准备不足的系统中意想不到的临床和情感复杂性

IF 4.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Social Science & Medicine Pub Date : 2024-09-25 DOI:10.1016/j.socscimed.2024.117368
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引用次数: 0

摘要

过去十年间,产前筛查技术迅速融入临床实践。这些技术给医疗保健带来了革命性的变化,也引发了复杂的社会伦理问题,如公平获取、医疗商业化和新优生学等。然而,这些技术对医疗保健专业人员的影响这一重要问题却较少受到关注。为了在澳大利亚的背景下探讨这一问题,我们于 2022 年 8 月至 11 月期间进行了一项调查,调查对象是在围产期为接受过胎儿诊断的父母提供服务的医护人员和专职医护人员。我们收到了来自超声波技师、助产士、遗传咨询师和医疗服务提供者等不同专业人士的 75 份实质性回复。在本文中,我们借鉴齐布兰德等人的 2021 意外后果框架,考虑了产前筛查技术对医护人员的意外影响。我们的反思性主题分析产生了三个关键主题:"意外的临床复杂性"、"在缺乏系统的情况下调整工作方法以跟上步伐 "和 "意外的情感劳动加剧"。产前检测技术有意识地增加了早期检测和胎儿信息,提供了增加孕期确定性的隐晦承诺。然而,我们的分析强调,这些先进的技术也产生了更多模棱两可的结果,给医疗服务提供者带来了意想不到的临床和情感复杂性。医护人员必须应对不断增加的临床不确定性和持续的变化,从而在准备不足的系统中加剧情绪劳动。最后,我们认为有必要认识到不断进步的产前筛查技术对医护人员的影响,并开展有针对性的专业培训,使医护人员为应对这些新技术带来的复杂性做好准备。
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Prenatal testing technologies in Australia: Unintended clinical and emotional complexities in underprepared systems
The past decade has seen technological advances in prenatal screening technologies rapidly integrated into clinical practice. These technologies have revolutionised healthcare and raised complex socio-ethical issues such as equitable access, medical commercialisation, and new eugenics. However, the important issue of the impact of these technologies on healthcare professionals is receiving less attention. Exploring this issue in the Australian context, we conducted a survey from August to November 2022, targeting health and allied health professionals who work with parents in the perinatal period who have received a fetal diagnosis. We received 75 substantive responses from a diversity of professionals, including sonographers, midwives, genetic counsellors and medical providers.
In this article, we consider the unintended impacts of prenatal screening technologies on healthcare workers, drawing from Ziebland et al., ’s 2021 unintended consequences framework. Our reflexive thematic analysis produced three key themes: “Unintended Clinical Complexities”, “Adapting Work Practices to Keep Up in Systems that Lack”, and “Unintended Intensification of Emotional Labour”. Prenatal testing technologies have intentionally increased early testing and fetal information, offering veiled promises of increased certainty in pregnancy. However, our analysis highlights that these advancing technologies also generate more ambiguous results, creating unintended clinical and emotional complexities for healthcare providers. Workers must manage increased clinical uncertainty and constant change, creating intensified emotional labour in under-prepared systems. We conclude by identifying the need to recognise the impacts of advancing prenatal screening technologies on healthcare workers and for targeted professional training to prepare healthcare professionals for the complexities introduced by these new technologies.
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来源期刊
Social Science & Medicine
Social Science & Medicine PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
9.10
自引率
5.60%
发文量
762
审稿时长
38 days
期刊介绍: Social Science & Medicine provides an international and interdisciplinary forum for the dissemination of social science research on health. We publish original research articles (both empirical and theoretical), reviews, position papers and commentaries on health issues, to inform current research, policy and practice in all areas of common interest to social scientists, health practitioners, and policy makers. The journal publishes material relevant to any aspect of health from a wide range of social science disciplines (anthropology, economics, epidemiology, geography, policy, psychology, and sociology), and material relevant to the social sciences from any of the professions concerned with physical and mental health, health care, clinical practice, and health policy and organization. We encourage material which is of general interest to an international readership.
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