Rami M Algahtani, Mohammad O Abu Zahirah, Zainab I Alsuni, Ajwaad S Alfahmi, Asim S Alfahmi, Najla A Kabli
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引用次数: 0
摘要
目的: 评估沙特阿拉伯社会对多发性硬化症的成见:评估沙特阿拉伯社会对多发性硬化症的成见:在沙特阿拉伯进行了一项描述性横断面在线调查研究。该调查针对沙特阿拉伯多发性硬化症患者的社会耻辱感。该问卷由患者使用谷歌表单填写,问卷旨在使用经过验证的 RSS-MS 量表测量人口统计学数据和社会耻辱感:在采用排除标准后,我们共收到 381 名多发性硬化症患者填写的研究问卷。研究结果表明,在沙特阿拉伯王国的一些地区,与其他地区相比,北部地区患者对多发性硬化症的社会耻辱感较高(25.5±10.0),而东部地区患者的社会耻辱感最低(17.3±7.2)。研究还显示,与已婚患者相比,未婚者的耻辱感更高(分别为 21.0±8.3 vs. 18.9±8.0;P=.011):我们的研究显示了沙特阿拉伯王国社会对多发性硬化症患者的鄙视程度。我们建议为多发性硬化症患者提供更多的心理和社会支持,并开展更多的志愿者活动。
Assessment of social stigma among multiple sclerosis patients in Saudi Arabia: A cross-sectional study.
Objectives: To assess the social stigma towards multiple sclerosis in Saudi Arabia.
Methods: A descriptive cross-sectional online survey study was done in Saudi Arabia. It targets social stigma among multiple sclerosis patients in Saudi Arabia. This questionnaire was filled out by patients using Google Forms, and the questionnaire was designed to measure the demographic data and social Stigma using a validated RSS-MS scale.
Results: After we applied the exclusion criteria, we received 381 MS patients who completed the study questionnaire. The results of the study showed that there are regions in the Kingdom of Saudi Arabia where the societal stigma towards multiple sclerosis is high compared to other regions in the Northern region (25.5±10.0) and the lowest among Eastern region patients (17.3±7.2). The study also, showed that unmarried people have a higher stigma compared to married patients (21.0±8.3 vs. 18.9±8.0, respectively; p=.011).
Conclusion: Our study showed the extent of societal stigma towards patients with multiple sclerosis in the Kingdom of Saudi Arabia. We recommend more psychological and social support for patients with multiple sclerosis and more volunteer campaigns for the disease.
期刊介绍:
Neurosciences is an open access, peer-reviewed, quarterly publication. Authors are invited to submit for publication articles reporting original work related to the nervous system, e.g., neurology, neurophysiology, neuroradiology, neurosurgery, neurorehabilitation, neurooncology, neuropsychiatry, and neurogenetics, etc. Basic research withclear clinical implications will also be considered. Review articles of current interest and high standard are welcomed for consideration. Prospective workshould not be backdated. There are also sections for Case Reports, Brief Communication, Correspondence, and medical news items. To promote continuous education, training, and learning, we include Clinical Images and MCQ’s. Highlights of international and regional meetings of interest, and specialized supplements will also be considered. All submissions must conform to the Uniform Requirements.