C. Geagan, A. Sandhu, J. Mason, M. McCallum, R. Muni-Lofra, D. Moat, K. Wong, E. Robinson, E. Grover, J. Michel-Sodhi, C. Bolaño Diaz, M. Schiava, D. Salman, M. James, G. Tasca, J. Diaz Manera, M. Guglieri, V. Straub, M. Elseed, C. Marini Bettolo
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Professionals working in neuromuscular teams frequently provide emotional support for individuals and their families with Neuromuscular conditions. However, it can be challenging to have these discussions in routine clinics. A retrospective audit of paperwork from routine muscle reviews throughout 2022 and 2023 was conducted to identify levels of psychosocial need in routine muscle reviews at a specialist Neuromuscular centre in Northern England, The John Walton Muscular Dystrophy Research Centre. Online surveys were distributed to clinicians within the team to discuss current challenges and facilitators of mental health discussions in clinic. This study aimed to (1) examine the frequency of mental health or cognitive discussions in clinic (2) understand the nature of psychosocial concerns raised in clinic, (3) identify potential barriers to these discussions as identified by multidisciplinary professionals within the team. Both paediatric and adult clinics were included, and no exclusion criteria regarding neuromuscular condition applied. Audit and evaluation are currently ongoing. The current audit and service evaluation will contribute to service development looking at improving psychosocial support in Neuromuscular care within the UK. A re-audit and evaluation next year will assess whether recommendations better facilitate these conversations within neuromuscular clinics.</div></div>","PeriodicalId":19135,"journal":{"name":"Neuromuscular Disorders","volume":"43 ","pages":"Article 104441.66"},"PeriodicalIF":2.7000,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"224P Psychosocial discussions in neuromuscular clinics from a professional lens: evidence from a service evaluation regarding barriers to discussions\",\"authors\":\"C. Geagan, A. Sandhu, J. Mason, M. McCallum, R. 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However, it can be challenging to have these discussions in routine clinics. A retrospective audit of paperwork from routine muscle reviews throughout 2022 and 2023 was conducted to identify levels of psychosocial need in routine muscle reviews at a specialist Neuromuscular centre in Northern England, The John Walton Muscular Dystrophy Research Centre. Online surveys were distributed to clinicians within the team to discuss current challenges and facilitators of mental health discussions in clinic. This study aimed to (1) examine the frequency of mental health or cognitive discussions in clinic (2) understand the nature of psychosocial concerns raised in clinic, (3) identify potential barriers to these discussions as identified by multidisciplinary professionals within the team. Both paediatric and adult clinics were included, and no exclusion criteria regarding neuromuscular condition applied. Audit and evaluation are currently ongoing. 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224P Psychosocial discussions in neuromuscular clinics from a professional lens: evidence from a service evaluation regarding barriers to discussions
Neuromuscular disorders have a high symptom burden and are frequently associated with many adverse psychosocial outcomes, particularly reduced quality of life and well-being. For some conditions, such as Duchenne muscular dystrophy, quality of life can be further affected by additional neurodevelopmental and cognitive needs. For individuals with neuromuscular condition, effective clinical care involves addressing the physical aspects of a condition, and the emotional and social dimensions that accompany it. Professionals working in neuromuscular teams frequently provide emotional support for individuals and their families with Neuromuscular conditions. However, it can be challenging to have these discussions in routine clinics. A retrospective audit of paperwork from routine muscle reviews throughout 2022 and 2023 was conducted to identify levels of psychosocial need in routine muscle reviews at a specialist Neuromuscular centre in Northern England, The John Walton Muscular Dystrophy Research Centre. Online surveys were distributed to clinicians within the team to discuss current challenges and facilitators of mental health discussions in clinic. This study aimed to (1) examine the frequency of mental health or cognitive discussions in clinic (2) understand the nature of psychosocial concerns raised in clinic, (3) identify potential barriers to these discussions as identified by multidisciplinary professionals within the team. Both paediatric and adult clinics were included, and no exclusion criteria regarding neuromuscular condition applied. Audit and evaluation are currently ongoing. The current audit and service evaluation will contribute to service development looking at improving psychosocial support in Neuromuscular care within the UK. A re-audit and evaluation next year will assess whether recommendations better facilitate these conversations within neuromuscular clinics.
期刊介绍：
This international, multidisciplinary journal covers all aspects of neuromuscular disorders in childhood and adult life (including the muscular dystrophies, spinal muscular atrophies, hereditary neuropathies, congenital myopathies, myasthenias, myotonic syndromes, metabolic myopathies and inflammatory myopathies).
The Editors welcome original articles from all areas of the field:
• Clinical aspects, such as new clinical entities, case studies of interest, treatment, management and rehabilitation (including biomechanics, orthotic design and surgery).
• Basic scientific studies of relevance to the clinical syndromes, including advances in the fields of molecular biology and genetics.
• Studies of animal models relevant to the human diseases.
The journal is aimed at a wide range of clinicians, pathologists, associated paramedical professionals and clinical and basic scientists with an interest in the study of neuromuscular disorders.
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