Vasiliki Rahimzadeh, Sarah C. Nelson, Adrian Thorogood, Jonathan Lawson, Stephanie M. Fullerton
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Ethical governance for genomic data science in the cloud
Cloud platforms offer distinct advantages, but questions remain about how to ethically and efficiently manage human genomic data in the cloud. Data governance needs to be adapted to ensure transparency and security for research participants, as well as equitable and sustainable access for researchers. Rahimzadeh et al. discuss the ethical, legal and social implications of storing and analysing human genomic data in the cloud and provide recommendations and new research directions for future, trustworthy cloud-based genomic data access and management.
期刊介绍:
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