云端基因组数据科学的道德管理

IF 39.1 1区 生物学 Q1 GENETICS & HEREDITY Nature Reviews Genetics Pub Date : 2024-10-18 DOI:10.1038/s41576-024-00789-9
Vasiliki Rahimzadeh, Sarah C. Nelson, Adrian Thorogood, Jonathan Lawson, Stephanie M. Fullerton
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引用次数: 0

摘要

云平台具有明显的优势,但如何在云平台上合乎伦理地有效管理人类基因组数据仍是个问题。需要对数据管理进行调整,以确保研究参与者的透明度和安全性,以及研究人员的公平和可持续访问。Rahimzadeh 等人讨论了在云中存储和分析人类基因组数据的伦理、法律和社会影响,并为未来基于云的可信基因组数据访问和管理提出了建议和新的研究方向。
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Ethical governance for genomic data science in the cloud
Cloud platforms offer distinct advantages, but questions remain about how to ethically and efficiently manage human genomic data in the cloud. Data governance needs to be adapted to ensure transparency and security for research participants, as well as equitable and sustainable access for researchers. Rahimzadeh et al. discuss the ethical, legal and social implications of storing and analysing human genomic data in the cloud and provide recommendations and new research directions for future, trustworthy cloud-based genomic data access and management.
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来源期刊
Nature Reviews Genetics
Nature Reviews Genetics 生物-遗传学
CiteScore
57.40
自引率
0.50%
发文量
113
审稿时长
6-12 weeks
期刊介绍: At Nature Reviews Genetics, our goal is to be the leading source of reviews and commentaries for the scientific communities we serve. We are dedicated to publishing authoritative articles that are easily accessible to our readers. We believe in enhancing our articles with clear and understandable figures, tables, and other display items. Our aim is to provide an unparalleled service to authors, referees, and readers, and we are committed to maximizing the usefulness and impact of each article we publish. Within our journal, we publish a range of content including Research Highlights, Comments, Reviews, and Perspectives that are relevant to geneticists and genomicists. With our broad scope, we ensure that the articles we publish reach the widest possible audience. As part of the Nature Reviews portfolio of journals, we strive to uphold the high standards and reputation associated with this esteemed collection of publications.
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