Youdi Chen, Qian Yu, Guomin Sun, Ziyin Han, Yi Zhang, Li Liu
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The mean scores for alienation, stereotype endorsement, perceived discrimination, and social withdrawal were (2.2 ± 0.7), (2.4 ± 0.7), (2.9 ± 0.6), and (2.2 ± 0.6) respectively. A comparison of the average family monthly income, family roles, duration, disease activity, duration of morning stiffness, visual analogue scale score, C-reactive protein, erythrocyte sedimentation rate, and total stigma score revealed significant differences (p < 0.05). The total treatment adherence score was negatively correlated with the total stigma's score and scores in each dimension (p < 0.05). Similarly, the total psychological health score and total physical health score were negatively correlated with the total stigma score and scores in each dimension (p < 0.05). The qualitative study identified six themes: self-denial, discrimination, lack of disease-related knowledge, high medical costs, increased life burden and resistance to stigma.</p><p><strong>Conclusion: </strong>Stigma affects RA patients' treatment adherence and quality of life negatively. Healthcare workers are advised to develop comprehensive intervention programs that address the current status of stigma, with the aim of controlling disease progression, reducing disability rates, and improving the quality of life for RA patients.</p>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":" ","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The correlation between stigma and treatment adherence, quality of life in patients with rheumatoid arthritis: A mixed-methods study.\",\"authors\":\"Youdi Chen, Qian Yu, Guomin Sun, Ziyin Han, Yi Zhang, Li Liu\",\"doi\":\"10.1111/jep.14143\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Aim: </strong>To investigate the current status of stigma in patients with rheumatoid arthritis (RA), and its correlation with treatment adherence and quality of life.</p><p><strong>Methods: </strong>The convenience sample of 266 patients diagnosed with RA was surveyed at the rheumatology and immunology outpatient department of a tertiary hospital in Jiangsu Province from May 2022 to September 2022. 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引用次数: 0
摘要
目的：调查类风湿关节炎（RA）患者的病耻感现状及其与治疗依从性和生活质量的相关性：方法：于 2022 年 5 月至 2022 年 9 月在江苏省某三级甲等医院风湿免疫科门诊对 266 名确诊为 RA 的患者进行了方便抽样调查。此外，有目的性地抽取20名RA患者进行半结构化深度访谈，并采用内容分析法对数据进行分析：266名参与者的成见总分为（47.8±10.8）分，表明他们的成见处于中等水平。疏远感、刻板印象认可、感知歧视和社交退缩的平均得分分别为（2.2 ± 0.7）、（2.4 ± 0.7）、（2.9 ± 0.6）和（2.2 ± 0.6）。对平均家庭月收入、家庭角色、病程、疾病活动度、晨僵持续时间、视觉模拟量表评分、C 反应蛋白、红细胞沉降率和污名化总分的比较显示出显著差异（P 结论：污名化影响 RA 患者的治疗：病耻感对 RA 患者的治疗依从性和生活质量有负面影响。建议医护人员针对污名化现状制定综合干预方案，以控制疾病进展，降低致残率，改善 RA 患者的生活质量。
The correlation between stigma and treatment adherence, quality of life in patients with rheumatoid arthritis: A mixed-methods study.
Aim: To investigate the current status of stigma in patients with rheumatoid arthritis (RA), and its correlation with treatment adherence and quality of life.
Methods: The convenience sample of 266 patients diagnosed with RA was surveyed at the rheumatology and immunology outpatient department of a tertiary hospital in Jiangsu Province from May 2022 to September 2022. In addition to this, 20 RA patients were purposively sampled for semi-structured in-depth interviews, and the data were analysed using content analysis methods.
Results: The total stigma's score of the 266 participants was (47.8 ± 10.8), which indicates a moderate level of stigma. The mean scores for alienation, stereotype endorsement, perceived discrimination, and social withdrawal were (2.2 ± 0.7), (2.4 ± 0.7), (2.9 ± 0.6), and (2.2 ± 0.6) respectively. A comparison of the average family monthly income, family roles, duration, disease activity, duration of morning stiffness, visual analogue scale score, C-reactive protein, erythrocyte sedimentation rate, and total stigma score revealed significant differences (p < 0.05). The total treatment adherence score was negatively correlated with the total stigma's score and scores in each dimension (p < 0.05). Similarly, the total psychological health score and total physical health score were negatively correlated with the total stigma score and scores in each dimension (p < 0.05). The qualitative study identified six themes: self-denial, discrimination, lack of disease-related knowledge, high medical costs, increased life burden and resistance to stigma.
Conclusion: Stigma affects RA patients' treatment adherence and quality of life negatively. Healthcare workers are advised to develop comprehensive intervention programs that address the current status of stigma, with the aim of controlling disease progression, reducing disability rates, and improving the quality of life for RA patients.
期刊介绍：
The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
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