约旦系统性红斑狼疮患者对护理服务的满意度:一项单中心研究。

IF 1.9 4区 医学 Q3 RHEUMATOLOGY Lupus Pub Date : 2024-10-15 DOI:10.1177/09612033241292203
Ghina Alsawad, Ayham Mahmoud, Tareq Qarain, Ahmad Toubasi, Marwan Adwan
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引用次数: 0

摘要

导言系统性红斑狼疮(SLE)是一种慢性多系统自身免疫性疾病,主要影响年轻女性。系统性红斑狼疮的慢性化和高度并发症导致患者频繁就诊和入院,因此有必要对医疗系统进行调查,以提高患者的满意度和生活质量:本研究旨在了解系统性红斑狼疮患者对约旦医疗系统的看法,尤其是考虑到该疾病的慢性性质。有了更清楚的了解,就可以对医疗系统进行改进,使患者和医疗系统都能从中受益:方法:通过电话对在约旦大学医院风湿病诊所复诊的 79 名患者进行横断面研究:结果:尽管有四分之一的患者抱怨药物的不良反应,但大多数患者对治疗服务和药物的总体满意度(分别为 4.28 ± 1.01 和 4.19 ± 0.96),李克特评分标准为 1-5 分。使用口服皮质类固醇与总体满意度较低明显相关(p = 0.050),而高收入(1000 约旦第纳尔及以上)和疲劳则导致用药满意度较低(p = 0.016 和 0.000)。良好的医患关系是患者最常提到的总体满意度原因(73.4%),并且与总体满意度(p = 0.000)和用药满意度(p = 0.004)呈正相关:结论:尽管存在不良反应和症状,系统性红斑狼疮患者的满意度仍然很高。结论:尽管有不良反应和症状,系统性红斑狼疮患者的满意度仍然很高。这些较高的满意度主要归功于良好的医患关系。
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SLE patient satisfaction with care in Jordan: A single-center study.

Introduction: Systemic Lupus Erythematosus (SLE) is a chronic multi-systemic autoimmune disease that mainly affects young females. SLE's chronicity and high level of complications yield frequent clinic visitations & hospital admissions, increasing the necessity to investigate the healthcare system and improve patient satisfaction and quality of life.

Objective: This study aimed to understand SLE patients' points of view on the healthcare system in Jordan, especially given the chronic nature of the disease. With a clearer understanding, improvements can be made to benefit both the patients and the healthcare system.

Methods: A cross-sectional study of 79 patients following up at the University of Jordan Hospital, rheumatology clinics were interviewed over the phone.

Result: The majority of patients were satisfied overall with the treatment services and medications as rated on a Likert scale of 1-5 (4.28 ± 1.01 and 4.19 ± 0.96, respectively) despite a quarter of patients complaining of adverse effects from the medications. The use of oral corticosteroids was significantly associated with a lower General Satisfaction Rate (p = 0.050), while high income (1000 Jordanian Dinars and above) and fatigue contributed to a lower Medication Satisfaction Rate (p = 0.016 and 0.000, respectively). A good physician-patient relationship was the most commonly cited reason for general satisfaction (73.4%) and was positively associated with the general (p = 0.000) and medication satisfaction (p = 0.004) rates.

Conclusion: SLE patients perceived high satisfaction rates despite adverse effects and symptoms. These higher satisfaction rates were seen predominantly due to good physician-patient relationships.

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来源期刊
Lupus
Lupus 医学-风湿病学
CiteScore
4.20
自引率
11.50%
发文量
225
审稿时长
1 months
期刊介绍: The only fully peer reviewed international journal devoted exclusively to lupus (and related disease) research. Lupus includes the most promising new clinical and laboratory-based studies from leading specialists in all lupus-related disciplines. Invaluable reading, with extended coverage, lupus-related disciplines include: Rheumatology, Dermatology, Immunology, Obstetrics, Psychiatry and Cardiovascular Research…
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