从社会支持理论的角度探讨神经科医生与多发性硬化症老年人之间的关系。

IF 2.5 Q2 CLINICAL NEUROLOGY Multiple Sclerosis Journal - Experimental, Translational and Clinical Pub Date : 2024-10-03 eCollection Date: 2024-10-01 DOI:10.1177/20552173241281458
Mina Stanikić, Felix Gille, Jonas Schlomberg, Paola Daniore, Susanne Kägi, Andrew Chan, Christian P Kamm, Chiara Zecca, Pasquale Calabrese, Patrick Roth, Claudia Baum, Irene Rapold, Milo A Puhan, Viktor von Wyl
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引用次数: 0

摘要

背景:尽管医疗保健从业人员(HCPs)是社会支持的重要来源,但有关神经科医生为老年多发性硬化症患者(pwMS)提供支持的研究仍然有限:目的:探讨 55 岁或以上的多发性硬化症老年患者对多发性硬化症护理的期望,并确定支持类型、他们与神经科医生关系中已满足和未满足的需求:我们采用混合方法分析了瑞士多发性硬化症登记参与者的调查数据。定量数据包括李克特量表,用于衡量神经科护理内外的多发性硬化症患者对多发性硬化症护理各方面的重要性。定性数据来自三个开放式问题,重点是神经科医生在神经科护理中为患者提供的支持。采用 Cutrona 和 Suhr 的社会支持编码框架,对数据进行了描述性和演绎性主题分析:在 286 名参与者(中位年龄 61.0 岁,四分位数间距 (IQR) 57.0-66.0;中位病程 23.5 年,IQR 15.0-31.0)中,84.6%(N = 244)接受了神经科治疗。定量分析结果强调了保健医生专业知识和会诊时间的重要性。定性分析确定了神经科医生与患儿关系中的所有社会支持领域,其中信息支持最为普遍,其次是情感支持。神经科医生的专业知识、可用性、综合建议、倾听和验证成为关键主题。未满足的需求相对较少,主要涉及补充医学信息不足、换位思考以及对疲劳等症状的理解:结论:老年患者认为神经科医生能够提供足够的全面支持,尤其看重神经科医生的充分可用性、信息和情感支持。需要改进的方面包括对辅助药物和同理心的关注。
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Exploring the relationship between neurologists and older persons with multiple sclerosis through the lens of social support theory.

Background: Although healthcare practitioners (HCPs) are a valuable source of social support, research on support provided by neurologists to older persons with multiple sclerosis (pwMS) remains limited.

Objectives: To explore expectations of pwMS aged 55 years or older regarding MS care and to identify support types, met and unmet needs within their relationship with neurologists.

Methods: Utilizing a mixed-methods approach, we analyzed survey data from Swiss Multiple Sclerosis Registry participants. Quantitative data included Likert scales gauging the importance of various aspects of MS care for pwMS both in and out of neurological care. Qualitative data were derived from three open-ended questions, focusing on neurologist-provided support for pwMS in neurological care. Data underwent descriptive and deductive thematic analysis, using Cutrona and Suhr framework for coding social support.

Results: Among the 286 participants (median age 61.0 years, interquartile range (IQR) 57.0-66.0; median disease duration 23.5 years, IQR 15.0-31.0), 84.6% (N = 244) were under neurological care. Quantitative findings highlighted the significance of HCP expertise and consultation time. Qualitative analysis identified all social support domains in the neurologist-pwMS relationship, with informational support being most prevalent, followed by emotional support. Neurologists' expertise, availability, comprehensive advising, listening, and validation emerged as key themes. Unmet needs were relatively infrequent and concerned insufficient information on complementary medicine, empathy, and understanding of symptoms like fatigue.

Conclusions: Older pwMS see neurologists as adequate providers of comprehensive support and particularly value neurologists' sufficient availability, informational and emotional support. Areas for improvement include attention to complementary medicine and empathy.

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来源期刊
CiteScore
4.70
自引率
0.00%
发文量
54
审稿时长
15 weeks
期刊最新文献
Cannabinoids for spasticity in patients with multiple sclerosis: A systematic review and meta-analysis. Treatment effect modifiers of immunotherapies for relapsing-remitting multiple sclerosis-A systematic review and meta-analysis. Cesarian sections in women with multiple sclerosis: A Canadian prospective pregnancy study. Exploring the relationship between neurologists and older persons with multiple sclerosis through the lens of social support theory. Illness representation in patients with multiple sclerosis: A preliminary narrative medicine study.
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