癌症患者动态代理感的合作式自述。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Qualitative Health Research Pub Date : 2024-10-18 DOI:10.1177/10497323241285959
Eeva Aromaa, Päivi Eriksson, Satu Koskinen
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引用次数: 0

摘要

通过合作式自述,我们研究了癌症患者在诊断和治疗阶段的代理感和癌症意义的转变。本文采用代理感视角,对癌症患者代理感的回顾性解释提供了新的理解,为疾病管理文献做出了贡献。作者们接受癌症诊断的经历以及共同撰写的相关故事说明了关系和环境因素如何促进癌症患者的代理感和疾病管理的快速转变。研究结果表明,代理意识的转变是认知、情感和身体限制与调整之间的一个协作和反思过程。我们展示了患者代理意识的转变和癌症意义的相应变化是如何受到近亲、医疗保健参与者和其他癌症患者的影响,以及 COVID-19 大流行和芬兰邻国俄罗斯对乌克兰发动战争导致的对军事冲突的恐惧。此外,本研究还说明了代入感的转变是如何形成的,以及对癌症是次要问题、模棱两可的陌生人、旅伴或敌人的理解的变化又是如何形成的。
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Collaborative Autoethnography of Cancer Patients' Dynamic Sense of Agency.

Through collaborative autoethnography, we studied shifts in cancer patients' sense of agency and the meaning of cancer during the diagnostic and treatment phases. This article contributes to the illness management literature by adopting sense of agency perspective that provides new understanding of retrospective interpretation of cancer patients' agency. The authors' experiences of receiving cancer diagnoses and a related, collectively written story illustrate how relational and contextual elements facilitate rapid shifts in cancer patients' sense of agency and illness management. The findings illustrate shifts in the sense of agency as a collaborative and reflexive process between cognitive, emotional, and bodily constraints and adjustments. We demonstrate how shifts in patients' sense of agency and respective changes in meanings attached to cancer were shaped by near ones, healthcare actors, and other cancer patients, as well as the COVID-19 pandemic and the fear of military conflict due to Finland neighbor Russia's war on Ukraine. Furthermore, the study illustrates how shifts in sense of agency shape and are shaped by changes in the understanding of cancer as either a secondary issue, ambiguous stranger, travel companion, or enemy.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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