为了优化神经肌肉疾病患者的功能,康复治疗[仍然]是必要的。

IF 2.8 3区 医学 Q2 CLINICAL NEUROLOGY Muscle & Nerve Pub Date : 2025-01-01 Epub Date: 2024-10-28 DOI:10.1002/mus.28285
Jaclyn Omura, Anne Stratton, Christina Fournier, Ileana Howard
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引用次数: 0

摘要

随着越来越多的疾病修饰治疗方法(DMTs)的出现,儿童和成人神经肌肉疾病(NMDs)患者的治疗环境正在发生迅速变化。这些 DMT 为不断发展的表型带来了希望和机会,尽管目前还没有一种 DMT 可以治愈疾病。康复治疗一直是 NMD 患者的标准治疗方法,即使在新型 DMT 出现后也应如此。跨学科的康复治疗方法是一种整体而全面的治疗方法,可满足患者的功能需求、肌肉骨骼并发症、疼痛、耐用医疗设备和支具需求。对于那些虽然接受了 DMT 治疗但仍有损伤和残疾的患者来说,这种护理仍将是必不可少的。此外,我们还必须考虑如何护理年龄迅速增长的新一批 NMD 患者。患有 NMD 的儿童预计将在成年后活得更长;而我们目前可能还没有足够的劳动力来支持这一人群。此时,我们有绝佳的机会再次强调康复在 NMD 患者护理中的重要性,同时重新审视历史上的康复实践,并以创新的方式提供服务,以优化这些高成本 DMTs 的效果。
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Rehabilitation is [still] necessary to optimize function in neuromuscular disorders.

The landscape of care for children and adults with neuromuscular disorders (NMDs) is rapidly changing as more disease-modifying treatments (DMTs) become available. These DMTs provide hope and opportunity for evolving phenotypes, though none (yet) are curative. Rehabilitation has been the standard of care for patients with NMDs and should remain so, even with the advent of novel DMTs. An interdisciplinary rehabilitation approach is holistic and comprehensive, addressing functional needs, musculoskeletal complications, pain, durable medical equipment, and bracing needs. This care will continue to be essential for patients who experience impairments and disability, despite receiving DMTs. Additionally, we must consider how to care for a new rapidly expanding cohort of patients aging with NMDs. Children with NMDs are expected to live longer into adulthood; a population that we may not have the workforce to support at this time. At this point, we have the perfect opportunity to reemphasize the importance of rehabilitation in the care of persons with NMDs, while we reexamine historical rehabilitation practices and innovatively deliver services to optimize the effects of these high-cost DMTs.

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来源期刊
Muscle & Nerve
Muscle & Nerve 医学-临床神经学
CiteScore
6.40
自引率
5.90%
发文量
287
审稿时长
3-6 weeks
期刊介绍: Muscle & Nerve is an international and interdisciplinary publication of original contributions, in both health and disease, concerning studies of the muscle, the neuromuscular junction, the peripheral motor, sensory and autonomic neurons, and the central nervous system where the behavior of the peripheral nervous system is clarified. Appearing monthly, Muscle & Nerve publishes clinical studies and clinically relevant research reports in the fields of anatomy, biochemistry, cell biology, electrophysiology and electrodiagnosis, epidemiology, genetics, immunology, pathology, pharmacology, physiology, toxicology, and virology. The Journal welcomes articles and reports on basic clinical electrophysiology and electrodiagnosis. We expedite some papers dealing with timely topics to keep up with the fast-moving pace of science, based on the referees'' recommendation.
期刊最新文献
AANEM News & Insights. Calendar of Events. Join AANEM. Corneal confocal microscopy in non-length-dependent small fiber neuropathy. A neuromuscular clinician's guide to magnetic resonance neurography.
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