药物获取计划：患者怎么看--澳大利亚转移性乳腺癌患者对利博昔布治疗效果的报告研究。

IF 1.8 4区医学 Q2 MEDICINE, GENERAL & INTERNAL Internal Medicine Journal Pub Date : 2024-10-28 DOI:10.1111/imj.16536

Natasha Yap, Vanessa Wong, Catherine Morton, Richard de Boer, Sally Baron-Hay, Robert Blum, Benjamin Forster, Susan Chua, Kerrie Clarke, Katharine Cuff, Michael Green, Elgene Lim, Kelly Mok, Louise Nott, Michelle Nottage, Ali Tafreshi, Daphne Tsoi, Anthony Uccellini, Peter Gibbs, Sheau Wen Lok

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引用次数: 0

摘要

本研究评估了澳大利亚转移性乳腺癌患者服用瑞博西来（ribociclib）后的药物获取计划（MAP）的患者报告结果（PROs）。研究发现，患者对加入 MAP 的认识有限，这强调了改进教育和同意程序的必要性。大多数患者对获得非资助药物表示感谢，并认为提高服药依从性是一项主要益处。将PRO数据与真实世界登记数据相结合，可为未来的MAP开发提供全面的见解。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Medicine Access Programmes: what do patients think – a patient-reported outcome study on ribociclib in metastatic breast cancer in Australia

This study evaluated patient-reported outcomes (PROs) of Medicine Access Programmes (MAPs) for Australian metastatic breast cancer patients on ribociclib. Limited patient awareness of MAP enrolment was identified, emphasising the need for improved education and consent processes. Most patients expressed gratitude for accessing non-funded medications and perceived enhanced medication adherence as a key benefit. Integrating PRO data with real-world registry data provides comprehensive insight for future MAP development.

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来源期刊

Internal Medicine Journal 医学-医学：内科

CiteScore

3.50

自引率

4.80%

发文量

600

审稿时长

3-6 weeks

期刊介绍： The Internal Medicine Journal is the official journal of the Adult Medicine Division of The Royal Australasian College of Physicians (RACP). Its purpose is to publish high-quality internationally competitive peer-reviewed original medical research, both laboratory and clinical, relating to the study and research of human disease. Papers will be considered from all areas of medical practice and science. The Journal also has a major role in continuing medical education and publishes review articles relevant to physician education.