如何养育患有注意力缺陷多动症的孩子:约旦人的观点。

Eman M Harb, Hanan D Al Obieat, Ayman M Hamdan-Mansour
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摘要

在约旦,养育患有注意力缺陷多动障碍(ADHD)的孩子是一项挑战,原因是普遍存在的行为问题、专业护理服务的匮乏以及普遍的社会耻辱感。这项现象学研究涉及 12 位约旦家长,他们的孩子年龄在 4-14 岁之间,均根据 DSM-IV-TR 标准被诊断为多动症。研究人员通过有目的的抽样招募参与者,并进行了半结构化访谈。主题分析揭示了三个关键主题:在 "多动症之旅 "中,家长们认识到了孩子的异常,报告了诊断过程中的痛苦,并描述了诊断和治疗过程中的各种不确定性。第二个主题是 "疾病是生活的一部分",家长们报告了疾病对家庭关系和社会生活的影响。第三个主题是 "照顾负担",反映了身心疲惫和经济负担。照顾多动症儿童的约旦父母面临着多种挑战,包括身体、情感、经济和社会挑战,以及获得专业服务的途径有限。确定他们的独特需求和挑战对于支持他们、提供适当的服务和资源以及制定政策和指导方针以提供符合文化习惯的优质服务至关重要。
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Parenting a child with attention deficit hyperactivity disorder: Jordanian's perspectives.

Raising your child with attention deficit hyperactivity disorder (ADHD) in Jordan is a challenge due to the prevailing behavioral concerns, low availability of specialized care, and generalized feelings of social stigma. This phenomenological study involved twelve Jordanian parents of children aged 4-14 years, all diagnosed with ADHD according to DSM-IV-TR criteria. Participants were recruited through purposive sampling, and semi-structured interviews were conducted. Thematic analysis revealed three key themes: "The Journey through ADHD," in which parents recognized the abnormalities of their children, reported suffering during the diagnosis, and described a wide range of uncertainty regarding the diagnosis and treatments. The second theme was "Disease as part of life," where parents reported the impact on family dynamics and social life. The third theme was "Caregiving burden," reflecting physical and emotional exhaustion and financial burden. Jordanian parents caring for children with ADHD face several challenges, including physical, emotional, economic, and social challenges and limited access to specialized services. Identifying their unique needs and challenges is essential in supporting them, providing appropriate services and resources, and developing policies and guidelines for culturally competent quality services.

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