家庭系统护理临床实践、教育和研究的真实实验室环境:转型行动研究协议》。

IF 1.4 Q3 HEALTH CARE SCIENCES & SERVICES JMIR Research Protocols Pub Date : 2024-10-30 DOI:10.2196/53090
Evelyn Huber, Erika Harju, Elisabeth Stark, André Fringer, Barbara Preusse-Bleuler
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引用次数: 0

摘要

背景:繁重的健康和疾病问题,如身体或精神疾病、意外事故、残疾以及出生或死亡等生命事件,都会影响家庭的健康和功能,并导致护理的复杂性和医疗费用的增加。大量研究证实,以家庭系统为中心的护理方法对病人、家庭护理者、家人和医护专业人员都有好处。然而,医护专业人员在与家庭合作时会遇到一些障碍,比如感觉没有准备好。以家庭系统为中心的治疗对话有助于家庭的日常应对、恢复能力和健康。最近,瑞士一所应用科学大学建立了一个家庭系统护理单元(FSCU),作为现实生活中的实验室。在这个单位里,医疗保健专业人员为家庭和家庭成员个人提供治疗对话,以支持日常症状管理和功能,减轻痛苦,提高健康和幸福感。其他医护人员、学生和受训人员通过单向窗口实时观察这些对话,并进行录像,用于研究和教育。人们对治疗性对话如何促进负担沉重的家庭发生有意义的变化,以及在家庭系统护理的真实实验室环境中进行替代学习的益处知之甚少:在本研究计划中,我们旨在加深了解治疗性对话如何为遭遇沉重健康和疾病负担问题的家庭和个人提供支持,以及家庭系统护理实验室环境如何为学生、临床受训人员和医疗保健专业人员的学习提供支持。方法:在此,我们采用转化行动研究设计,包括平行研究和后续子研究,以促进家庭系统护理方面的知识和实践。我们将采用定性多案例研究设计,通过分析治疗对话的录音来探索治疗对话的益处。学生、受训人员和专业人员的学习过程将通过基于单人和焦点小组访谈的描述性定性研究设计进行调查。数据将采用既定的编码方法进行分析:在 3 项单一案例研究中对治疗性对话进行了调查,每项研究涉及 3 个治疗性对话单元的序列。目前正在计划收集有关第二个研究问题的数据:初步结果证实,治疗性对话有助于家庭的应对。这使家庭治疗对话单元成为一个具有伦理敏感性的研究环境。这项计划不仅能为家庭的健康和幸福提供支持,还有助于减轻医疗和社会护理系统的财政和劳动力负担:DERR1-10.2196/53090。
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A Real-Life Laboratory Setting for Clinical Practice, Education, and Research in Family Systems Care: Protocol for a Transformational Action Research Study.

Background: Burdening health and illness issues such as physical or mental illnesses, accidents, disabilities, and life events such as birth or death influence the health and functioning of families and contribute to the complexity of care and health care costs. Considerable research has confirmed the benefits of a family systems-centered care approach for patients, family caregivers, families, and health care professionals. However, health care professionals face barriers in working with families, such as feeling unprepared. Family systems-centered therapeutic conversations support families' day-to-day coping, resilience, and health. A family systems care unit (FSCU) was recently established as a real-life laboratory at one of the Swiss Universities of Applied Sciences. In this unit, health care professionals offer therapeutic conversations to families and individual family members to support daily symptom management and functioning, soften suffering, and increase health and well-being. These conversations are observed in real time through a 1-way window by other health care professionals, students, and trainees and are recorded with video for research and education. Little is known about how therapeutic conversations contribute to meaningful changes in burdened families and the benefits of vicarious learning in a real-life laboratory setting for family systems care.

Objective: In this research program, we aim to deepen our understanding of how therapeutic conversations support families and individuals experiencing burdening health and illness issues and how the FSCU laboratory setting supports the learning of students, clinical trainees, and health care professionals.

Methods: Here we apply a transformational action research design, including parallel and subsequent substudies, to advance knowledge and practice in family systems care. Qualitative multiple-case study designs will be used to explore the benefits of therapeutic conversations by analyzing recordings of the therapeutic conversations. The learning processes of students, trainees, and professionals will be investigated with descriptive qualitative study designs based on single and focus group interviews. The data will be analyzed with established coding methods.

Results: Therapeutic conversations have been investigated in 3 single-case studies, each involving a sequence of 3 therapeutic conversation units. Data collection regarding the second research question is planned.

Conclusions: Preliminary results confirm the therapeutic conversations to support families' coping. This renders the FSCU a setting for ethically sensitive research. This program will not only support the health and well-being of families, but also contribute to relieving the financial and workforce burdens in the health and social care system.

International registered report identifier (irrid): DERR1-10.2196/53090.

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