"我不是癌症患者,但癌症对我的影响一样大":对农村照顾者在照顾癌症患者时寻求和获得健康和幸福支持的经历进行定性研究。

IF 2.8 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Supportive Care in Cancer Pub Date : 2024-10-31 DOI:10.1007/s00520-024-08947-9
Elizabeth A Johnston, Katelyn E Collins, Jazmin N Vicario, Chris Sibthorpe, Belinda C Goodwin
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引用次数: 0

摘要

目的:护理人员为癌症患者提供了重要的支持,但他们自己却常常感到缺乏支持。本研究调查了农村照顾者在照顾癌症患者时为自己的健康和幸福寻求支持的经历:通过半结构式访谈,20 名农村护理人员描述了他们在护理癌症患者时为自己的健康和幸福寻求和获得支持的经历,包括哪些支持是有帮助的,或者本来会有帮助。我们采用内容分析法对访谈记录进行了分析,以确定所寻求支持的类型和来源,以及支持的哪些方面有用或无用:结果:所寻求的健康和福利支持涉及医疗和社会心理领域。护理人员的回答反映了寻求支持的促进因素和障碍,以及获得支持的益处和挑战。促进寻求支持的因素包括远程医疗选择和参与患者护理讨论,因为这有助于护理人员了解他们在工作中的预期。障碍包括在旅行治疗期间的社会隔离,以及护理人员的支持需求未得到医务人员或社会网络的承认或理解。获得支持的益处包括有助于处理日常事务和与其他服务机构建立联系。挑战包括接受支持的延迟、支持时间不足以及护理提供者缺乏生活经验:为优化农村护理人员获得健康和福利支持的途径,支持服务的提供应及时、灵活、简单易用、与患者护理相结合、提高护理人员的应对能力、提供获得额外支持的途径并减轻护理人员的负担。
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"I'm not the one with cancer but it's affecting me just as much": A qualitative study of rural caregivers' experiences seeking and accessing support for their health and wellbeing while caring for someone with cancer.

Purpose: Caregivers provide vital support to people with cancer but often report feeling unsupported themselves. This study investigated rural caregivers' experiences seeking support for their health and wellbeing while caring for someone with cancer.

Methods: Through semi-structured interviews, 20 rural caregivers described their experiences seeking and accessing support for their own health and wellbeing while caring for someone with cancer, including what support was, or would have been, helpful. Interview transcripts were analysed using content analysis to identify the type and source of support sought and what aspects of the support were helpful or unhelpful.

Results: Health and wellbeing support was sought across medical and psychosocial domains. Caregivers' responses reflected both facilitators and barriers to support-seeking and benefits and challenges of accessing support. Facilitators to support-seeking included telehealth options and being involved in patient care discussions, as this helped caregivers know what to expect in their role. Barriers included social isolation while travelling for treatment and caregivers' needs for support not being acknowledged or understood by medical staff or social networks. Benefits of accessing support included help with managing daily responsibilities and being linked with additional services. Challenges included delays in receiving support, inadequate duration of support, and lack of lived experience among care providers.

Conclusions: To optimise rural caregivers' access to support for their health and wellbeing, support services should be prompt and flexible in delivery, simple to navigate, integrated with patient care, improve caregivers' coping ability, provide access to additional supports, and reduce caregiver burden.

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来源期刊
Supportive Care in Cancer
Supportive Care in Cancer 医学-康复医学
CiteScore
5.70
自引率
9.70%
发文量
751
审稿时长
3 months
期刊介绍: Supportive Care in Cancer provides members of the Multinational Association of Supportive Care in Cancer (MASCC) and all other interested individuals, groups and institutions with the most recent scientific and social information on all aspects of supportive care in cancer patients. It covers primarily medical, technical and surgical topics concerning supportive therapy and care which may supplement or substitute basic cancer treatment at all stages of the disease. Nursing, rehabilitative, psychosocial and spiritual issues of support are also included.
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