德雷维综合征患儿的饮食习惯和行为:病例对照研究

IF 6.6 1区 医学 Q1 CLINICAL NEUROLOGY Epilepsia Pub Date : 2024-11-06 DOI:10.1111/epi.18179
Alexandra Laliberté, Lyna Siafa, Arij Soufi, Christelle Dassi, Sophie J Russ-Hall, Ingrid E Scheffer, Kenneth A Myers
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引用次数: 0

摘要

本研究评估了德雷维综合征患者的食物偏好和饮食行为。研究人员招募了被确诊患上德拉维特综合征的患者,以及由癫痫患者(任何形式)的兄弟姐妹组成的对照组。照顾者填写了食物偏好问卷和儿童进食行为问卷,以及两个有关进食挑战的开放式问题。研究共纳入 78 名参与者(45 名患有德雷维综合征,33 名为对照组)。与对照组患者相比,患有本病的患者对水果(p = .000099)、肉类和鱼类(p = .00094)以及零食(p = .000027)的食物偏好平均得分较低。此外,患有本病的人情绪暴饮暴食(p = .0085)和享受食物(p = .0012)的情况较少,但进食缓慢(p = .00021)和对食物大惊小怪(p = .0064)的情况较多。在一项分组分析中,只有儿童(年龄
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Eating habits and behaviors in children with Dravet syndrome: A case-control study.

This study evaluated food preferences and eating behaviors of individuals with Dravet syndrome. Patients diagnosed with Dravet syndrome were recruited, as well as a control group composed of siblings of patients with epilepsy (any form). The Food Preference Questionnaire and the Child Eating Behavior Questionnaire were completed by caregivers along with two open-ended questions regarding eating challenges. Seventy-eight participants (45 with Dravet syndrome and 33 controls) were included. Compared to controls, mean scores for food preference were lower for fruits (p = .000099), meats and fish (p = .00094), and snacks (p = .000027) in Dravet syndrome. People with Dravet syndrome also had less emotional overeating (p = .0085) and food enjoyment (p = .0012), but more slowness in eating (p = .00021) and food fussiness (p = .0064). In a subgroup analysis of only pediatric (age <18 years) patients, similar results were observed for both food preferences and eating habits. In qualitative data, caregivers most commonly reported difficulties with fixation on specific foods. This study demonstrates specific food preferences and challenging eating behaviors in individuals with Dravet syndrome. These data provide potential avenues for nutritional interventions and behavioral therapies to increase the quality of life of patients and their families.

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来源期刊
Epilepsia
Epilepsia 医学-临床神经学
CiteScore
10.90
自引率
10.70%
发文量
319
审稿时长
2-4 weeks
期刊介绍: Epilepsia is the leading, authoritative source for innovative clinical and basic science research for all aspects of epilepsy and seizures. In addition, Epilepsia publishes critical reviews, opinion pieces, and guidelines that foster understanding and aim to improve the diagnosis and treatment of people with seizures and epilepsy.
期刊最新文献
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