转型后照顾者对支持网络的看法和体验:系统性文献回顾和元综合。

Revista da Escola de Enfermagem da U S P Pub Date : 2024-11-08 eCollection Date: 2024-01-01 DOI:10.1590/1980-220X-REEUSP-2024-0047en
Catarina Inês Costa Afonso, Ana Cristina Spinola Madeira, Susana Pinto Leite Vasconcelos Teixeira de Magalhães
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引用次数: 0

摘要

目的研究并综合有关非正式后期护理的具体环境和现有支持网络的经验和观点的证据:根据 JBI 的框架,在 CINAHL、LILACS、MEDLINE、BVS 和 PsycINFO 数据库中进行了无时间限制的定性系统综述。文章使用 JBI 定性数据提取工具进行评估。共确定了 1,236 篇文章,其中 18 篇被选中,7 篇被分析。所发现的证据水平为中等:非正式的后期照护者的经历和观点揭示了对支持的需求,即:在个人发展方面--意义归属、自我照护观点和身份重建;在管理照护遗留问题的影响方面--照护轨迹中支持的不连续性、经济脆弱性和对心理健康的影响;未来的正式和非正式资源--对未来的预测、结构化服务以及家庭和社区支持:结论:照护者对其支持网络的看法是,他们的个人和人际需求没有得到确认,正规和非正规服务没有得到阐明。
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Post-informal caregiver's perspectives and experiences of the support network: a systematic literature review and meta-synthesis.

Objective: To examine and synthesize the evidence of experiences and perspectives on the specific context of informal post-care and the existing support network.

Method: This is a qualitative systematic review with metasynthesis, according to the framework of the JBI, carried out in the CINAHL, LILACS, MEDLINE, BVS and PsycINFO databases, with no time limit. The articles were evaluated using the JBI Qualitative Data Extraction Tool. A total of 1,236 articles was identified, of which 18 were selected and 7 were analyzed. The level of evidence found was moderate.

Results: The experiences and perspectives of the informal post-caregiver reveal the need for support, namely: in personal development - attribution of meaning, in self-care perspectives and in identity reconstruction; in managing the impact of the legacy of caring - discontinuity of support in the trajectory of caring, financial vulnerability, and the impact on mental health; formal and informal resources for the future - projection of the future, structured services and family and community support.

Conclusion: Post-caregivers' perception of their support network is that their individual and interpersonal needs are not identified, and that formal and informal services are not articulated.

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