年轻女性乳腺癌患者的观点:患者的经历显示了改善治疗的机会。

IF 1.2 4区 医学 Q4 ONCOLOGY Journal of adolescent and young adult oncology Pub Date : 2024-11-11 DOI:10.1089/jayao.2024.0045
Sara P Myers, Jaime Gilliland, Shari B Goldfarb, Mary L Gemignani
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引用次数: 0

摘要

在这项焦点小组研究中,11 名年龄小于 45 岁的女性于 2020 年 3 月至 2021 年 4 月期间在纪念斯隆-凯特琳癌症中心(美国纽约州纽约市)接受了治疗,研究人员询问了患者对资源类型、信息提供的时间和方法的偏好。患者表示对个性化医疗、获得综合健康和整体治疗方法以及早期咨询以保留生育能力感兴趣。他们的叙述阐述了确诊年龄如何影响人际关系和生活质量,并为干预措施提供了方向,以更好地为这一人群提供咨询和支持。
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Perspectives of Young Women with Breast Cancer: Patient Experiences Indicate Opportunities to Improve Treatment.

In this focus group study of 11 women younger than 45 years of age treated at Memorial Sloan Kettering Cancer Center (New York, NY, USA) between March 2020 and April 2021, patients were asked about their preferences for types of resources, and timing and method of information delivery. Patients expressed interest in personalized medicine, access to integrative health and a holistic approach to treatment, and early consultation for fertility preservation. Their narratives elaborated on how age at diagnosis influences interpersonal relationships and quality of life, and provides direction for interventions to better counsel and support this population.

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来源期刊
CiteScore
3.70
自引率
15.00%
发文量
114
期刊介绍: Journal of Adolescent and Young Adult Oncology (JAYAO) breaks new ground as the first cancer journal dedicated to all aspects of adolescent and young adult (AYA)-aged cancer patients and survivors. JAYAO is the only central forum for peer-reviewed articles, reviews, and research in the field, bringing together all AYA oncology stakeholders and professionals across disciplines, including clinicians, researchers, psychosocial and supportive care providers, and pediatric and adult cancer institutions.
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