晚期癌症患者的死亡教育需求:一项定性研究。

IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES BMC Palliative Care Pub Date : 2024-11-08 DOI:10.1186/s12904-024-01540-1
Shenghuan Yang, Chao Yan, Jing Li, Yinglu Feng, Huizini Hu, Yonghong Li
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引用次数: 0

摘要

背景:越来越多的晚期癌症患者可能面临死亡的现实。在中国,癌症相关死亡在居民死亡因素中占首位,占所有死亡的近四分之一。晚期癌症患者既要面对疼痛、体能下降、功能障碍等生理挑战,又要面对疾病治疗过程中的死亡焦虑、死亡恐惧、无意义感和绝望感等心理问题。死亡教育是一种教育患者如何应对死亡、减轻与死亡相关的焦虑和恐惧、平静地面对死亡的方法,从而促进安详的临终体验。目前,中国缺乏针对患者具体情况的死亡教育内容。因此,本研究旨在探讨中国晚期癌症患者的死亡教育需求内容:方法:采用基于现象学的定性研究方法,选取 2022 年 11 月至 2023 年 6 月期间的 19 名晚期癌症患者作为研究对象。采用半结构式访谈法进行访谈,并采用Colaizzi七步分析法对数据进行整理和分析:提取了六个主题:1.死亡认知与教育;2.生命回顾;3.死亡伦理;4.临终决策;5.社会支持;6.疾病治疗:晚期癌症患者面临着疾病和死亡前景所带来的巨大痛苦。这种痛苦会影响他们的生活质量,甚至影响治疗决定。必须全面评估患者的现状和需求,根据患者的具体情况采取持续的干预措施。这种方法包括实施有针对性的死亡教育内容和方法。在开展死亡教育时,必须考虑患者的知识框架和接受程度。结合病人的疾病进展和治疗,以及解决他们的负面情绪状态,对于提高病人的整体福祉和生活质量至关重要。
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The death education needs of patients with advanced cancer: a qualitative research.

Background: Cancer remains a global health concern, with nearly 20 million new cancer cases and approximately 10 million cancer-related deaths reported in 2020.An increasing number of individuals with advanced-stage cancer are likely to confront the reality of mortality.In China, cancer-related deaths hold the top position among factors contributing to resident mortality, accounting for nearly a quarter of all deaths. Patients with advanced-stage cancer contend with both physical challenges such as pain, physical decline, and functional impairments, as well as psychological issues including death anxiety, fear of death, and feelings of meaninglessness and hopelessness during disease treatment. Death education serves as a method to educate patients on coping with death, alleviating death-related anxieties and fears, and approaching death calmly, thereby facilitating a peaceful end-of-life experience. Currently, there is a dearth of death education content tailored to patients'specific circumstances in China. Consequently, this study aims to explore the content of death education needs among patients with advanced-stage cancer in China.

Methods: A qualitative research based on phenomenology was used to select 19 patients with advanced cancer from November 2022 to June 2023. Semi-structured interviews were used to interview, and Colaizzi 7-step analysis method was used to organize and analyze the data.

Results: Six themes were extracted: 1. Death cognition and education; 2. Life review; 3. Ethics of death; 4. End-of-life decision-making; 5. Social support; 6. Disease treatment.

Conclusions: Patients with advanced-stage cancer face significant distress caused by their illness and the prospect of death. This distress can impact their quality of life and even influence treatment decisions. It's essential to comprehensively assess the current state and needs of patients, engaging in ongoing interventions tailored to individual patient circumstances. This approach involves implementing targeted death education content and methods. When executing death education, it's imperative to consider the patient's knowledge framework and their level of acceptance. Integrating the patient's disease progression and treatment, as well as addressing their negative emotional states, becomes crucial for enhancing the patient's overall well-being and quality of life.

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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
期刊最新文献
Communication about incurable illness and remaining life between spouses and patients with incurable illness receiving specialized home care: effects of a family caregiver-targeted web-based psycho-educational intervention. Correction: Adapting the serious illness conversation guide for unhoused older adults: a rapid qualitative study. Online education in palliative care - A national exploratory multimethod study. The family talk intervention prevent the feeling of loneliness - a long term follow up after a parents life-threatening illness. Is the use of antibiotic stewardship measures in the context of specialized outpatient palliative care sensible and feasible? An interview-based study.
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