就医和护理的连续性:乳腺癌患者及其家人在 2011 年日本福岛三重灾难后的经历定性评估。

IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Disaster Medicine and Public Health Preparedness Pub Date : 2024-11-11 DOI:10.1017/dmp.2024.162
Priya Singh, Stephanie Montesino, Akihiko Ozaki, Michio Murakami, Yudai Kaneda, Toshiki Abe, Tianchen Zhao, Chika Yamamoto, Naomi Ito, Isamu Amir, Erika Yamashita, Hiroaki Saito, Toyoaki Sawano, Kenji Gonda, Hiromichi Ohira, Robert Yanagisawa, Craig Katz, Masaharu Tsubokura
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引用次数: 0

摘要

目的:虽然已有研究探讨了大规模灾害对易受灾害影响的个人的影响,但这些分析可能无法捕捉到全部影响。本研究从定性角度探讨了 2011 年 3 月福岛三重灾难对乳腺癌患者及其家属的影响,旨在强调纳入家属叙述对全面了解大规模灾难影响的重要性:方法:利用两家医院的医疗记录,确定了灾难期间去世的乳腺癌患者。采用半结构化方法对亲属进行了访谈。通过布劳恩和克拉克方法以及 Taguette 转录软件进行了主题分析:对六位患者的七位家属进行的访谈揭示了三大主题:家属的护理负担及其与患者之间加深的联系;患者面临的广泛医疗挑战及其身体和精神衰退;以及灾难期间因资源短缺和疏散困境而产生的共同困惑:本研究揭示了重大的基础设施问题,如医疗支持减少和家庭护理负担沉重,以及在危机时刻关系得到加强。今后的研究应针对不同的灾害背景调查这些问题,并采取积极措施防止这些挑战的加剧。
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Medical Access and Care Continuity: Qualitative Assessments of Patients with Breast Cancer and Family Members' Experiences Following the 2011 Triple Disaster in Fukushima, Japan.

Objectives: While studies have examined the effects of large-scale disasters on disaster-vulnerable individuals, these analyses may not capture the full impact. This study qualitatively explored the impacts of the March 2011 Fukushima triple disaster on patients with breast cancer and their families, aiming to highlight the importance of incorporating family narratives to grasp the full effect of large-scale disasters.

Methods: Utilizing the medical records from two hospitals, deceased patients with breast cancer from the disaster period were identified. Relatives were interviewed using a semi-structured approach. Thematic analysis was conducted via the Braun and Clarke method and Taguette transcription software.

Results: Interviews with seven family members of six patients revealed three main themes: the family's caregiving burden and their deepened bonds with the patient, the patients' extensive medical challenges and their physical and mental decline, and the shared confusion during the disaster due to resource shortages and evacuation dilemmas.

Conclusions: This study uncovered significant infrastructural issues such as reduced medical support and the heavy caregiving load on families, amidst some strengthened relationships during a time of crisis. Future research should investigate these issues across various disaster contexts, and proactive measures should be implemented to prevent exacerbation of these challenges.

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来源期刊
Disaster Medicine and Public Health Preparedness
Disaster Medicine and Public Health Preparedness PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
4.40
自引率
7.40%
发文量
258
审稿时长
6-12 weeks
期刊介绍: Disaster Medicine and Public Health Preparedness is the first comprehensive and authoritative journal emphasizing public health preparedness and disaster response for all health care and public health professionals globally. The journal seeks to translate science into practice and integrate medical and public health perspectives. With the events of September 11, the subsequent anthrax attacks, the tsunami in Indonesia, hurricane Katrina, SARS and the H1N1 Influenza Pandemic, all health care and public health professionals must be prepared to respond to emergency situations. In support of these pressing public health needs, Disaster Medicine and Public Health Preparedness is committed to the medical and public health communities who are the stewards of the health and security of citizens worldwide.
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