痴呆症早期患者眼中的自我缩小--第二次报告》。

Hiromi Toki, Masako Tai, Sayumi Nojima
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引用次数: 0

摘要

目的:本研究旨在揭示被诊断为痴呆症早期患者的自我意识,在这一阶段,患者试图缩小自己的世界:研究采用定性归纳研究方法,数据收集采用半结构化访谈法。访谈在 2017 年至 2019 年期间进行。15名参与者是日本一个约有95万人口的城市的有家庭的居民:所有病例的诊断结果均为阿尔茨海默病。在 15 名参与者中,6 人为男性,9 人为女性。平均年龄为 69.9 岁。MMSE 平均分为 19.8 分。首次诊断的平均时间为 2 年。平均访谈时间为 51 分钟。这些被诊断为轻度痴呆症的患者所感知到的狭隘自我由 "被忽视的自我 "和 "封闭的自我 "组成:他们生活在一个安全的世界里,放弃了自己的可能性,体验到了狭隘,但他们却无法放弃,怀有遗憾、愤怒、怨恨和荒谬感。我们相信,这项研究将有助于我们了解痴呆症早期患者的经历,并有助于提供更适合患者的护理服务。
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The Narrowing of Self as Perceived by People in the Early Stages of Dementia-The Second Report.

Aim: The purpose of this study is to shed light on the sense of self that occurs amongst those who have been diagnosed with the early stages of dementia, where the individual attempts narrowing their world.

Methods: The research was conducted using qualitative induction research methods, and data were collected using semi-structured interview methods. The interviews were conducted between 2017 and 2019. The 15 participants were residents with families in a Japanese city of about 950,000 people.

Results: The diagnosis was Alzheimer's disease in all cases. Of the 15 participants, six were male and nine female. The average age was 69.9 years. The average score on the MMSE was 19.8 points. The average period since the first diagnosis was 2 years. The average interview time was 51 minutes. The narrowing self perceived by these people diagnosed with mild dementia was composed of the "neglected self" and "closed self."

Conclusion: While living in a safe world in which they had given up on their own possibilities and experienced narrowing, they were unable to give up and harbored regret, anger, resentment, and feelings of absurdity. We believe that this study will help us understand the experiences of people in the early stages of dementia and contribute to providing nursing care that is more tailored to the individuals involved.

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来源期刊
CiteScore
0.60
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审稿时长
12 weeks
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