看不见的英雄:探索精神分裂症护理对家庭的影响》(Unseen Heroes: Exploring the Impact of Schizophrenia Caregiving on Families.

IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Journal of evaluation in clinical practice Pub Date : 2024-11-20 DOI:10.1111/jep.14246
Ghinasha Chaudhary, Alia Asmat
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引用次数: 0

摘要

背景:精神分裂症是一种复杂的精神疾病,它不仅会影响被诊断的患者,还会对其家人和照顾者产生深远的影响。本文旨在阐明照护者所面临的情感、社会和实际挑战,以及他们在复杂的照护过程中所采用的应对机制:方法:通过对精神分裂症患者的护理人员进行半结构式访谈,采用主题分析法揭示其最初的反应、动态、对日常生活的影响以及应对技巧:对照护者访谈的主题分析揭示了一些主要的主题,包括照护过程中的情绪波动、为精神分裂症患者的亲人创造充实的生活、平衡照护责任以及社会支持网络的重要性:照顾者在应对照顾精神分裂症患者所面临的挑战时,往往会经历从爱和同情到沮丧和无助等各种情绪。此外,照护者还可能面临污名化、社会隔离和经济压力等问题,从而使他们的照护历程变得更加复杂。
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Unseen Heroes: Exploring the Impact of Schizophrenia Caregiving on Families

Background

Schizophrenia is a complex mental health disorder that not only affects the individual diagnosed but also has profound implications for their families and caregivers. This paper aims to shed light on the emotional, social and practical challenges faced by caregivers, as well as the coping mechanisms they employ to navigate the complexities of caregiving.

Methods

Through semi-structured interviews with caregivers of patients with schizophrenia, thematic analysis was employed to uncover the initial reactions, dynamics, daily life impact and coping skills.

Results

Thematic analysis of caregiver interviews reveals dominant themes including the emotional rollercoaster of caregiving, fostering fulfilling lives for loved ones with schizophrenia, the balancing act of caregiving responsibilities and the importance of social support networks.

Conclusion

Caregivers often experience a wide range of emotions, from love and empathy to frustration and helplessness, as they navigate the challenges of supporting their loved ones with schizophrenia. Additionally, caregivers may face stigma, social isolation and financial strain, further complicating their caregiving journey.

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来源期刊
CiteScore
4.80
自引率
4.20%
发文量
143
审稿时长
3-8 weeks
期刊介绍: The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
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