从母亲的角度看智障儿童的兄弟姐妹:定性研究。

IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Journal of Intellectual Disabilities Pub Date : 2024-11-19 DOI:10.1177/17446295241301851
Fatma Dinç, Aylin Kurt, Emine Güneş Şan
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引用次数: 0

摘要

本定性研究旨在从母亲的视角,了解作为智障儿童兄弟姐妹的定义及其对儿童的影响。在 2023 年 11 月至 2024 年 1 月期间,研究人员使用 "半结构化访谈表 "对 14 位母亲进行了深入的个人访谈,这些母亲的孩子年龄在 12-18 岁之间,在土耳其的 7 家特殊教育和康复中心学习。半结构式访谈表包括以下问题:"您能告诉我们您的智障儿童与他/她的兄弟姐妹之间的关系吗?采用主题分析法确定了主要主题和次主题。通过主题分析,从数据中确定了四个主题:(1)特殊关系(2)完美的需要(3)内疚和羞愧(4)限制。研究结果显示,从母亲的角度来看,作为智障儿童的兄弟姐妹既有积极的一面,也有消极的一面。
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Being a sibling of a child with intellectual disability from the perspective of mothers: A qualitative study.

This qualitative study was conducted to identify how being a sibling of a child with intellectual disabilities is defined for the child, its implications from the perspective of mothers. Data were collected through in-depth individual interviews using a "Semi-structured interview form" between November 2023 and January 2024 with 14 mothers of children aged 12-18 who were studying in seven special education and rehabilitation centres in Türkiye. The semi-structured interview form included questions such as "Can you tell us about the relationship between your child with intellectual disability and his/her sibling?" Main themes and sub-themes were developed using thematic analysis. Four main themes were identified from the data through thematic analysis: (1) A special relationship (2) The need to be perfect (3) Guilt and shame (4) Restriction. The findings revealed both positive and negative aspects of being a sibling of children with intellectual disabilities from the mothers' perspective.

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来源期刊
CiteScore
3.40
自引率
13.30%
发文量
82
期刊介绍: The principal aim of the journal is to provide a medium for the exchange of best practice, knowledge and research between academic and professional disciplines from education, social and health settings to bring about advancement of services for people with intellectual disabilities. The idea of a practice-led journal is both exciting and timely. This journal serves as a medium for all those involved with people with intellectual disabilities to submit and publish papers on issues relevant to promoting services for people with intellectual disabilities.
期刊最新文献
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