为专业人员改编和测试电子学习资源,以便在儿童的重要照顾者因癌症去世时为家庭提供支持。

IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES BMC Palliative Care Pub Date : 2024-11-21 DOI:10.1186/s12904-024-01601-5
Carla O'Neill, Jeffrey R Hanna, Sarah Sheehan, Tanya McCance, Amanda Drury, Cherith J Semple
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引用次数: 0

摘要

目的:医疗和社会护理专业人员(专业人员)往往缺乏知识、技能和信心,无法为临终前负有照顾子女重大责任的成年人提供支持:在 "以人为本的方法 "的指导下,我们对以理论为导向、以证据为基础的面对面教育干预措施进行了调整,并将其优化为电子学习资源。该方法结合了当前的证据,以及专家组、学习技术专家和研究团队的见解,最终设计出了一个电子学习原型。通过对最终用户(13 人)的畅想访谈以及患者和公众的参与(4 人),对原型的可接受性和可用性进行了优化:结果:通过迭代调整和优化过程,实现了导航功能的改进、语言清晰度的提高以及图像和互动组件的适当性。在优化过程中,得到了积极的反馈,特别是关于 "外观和感觉 "以及整个电子学习资源中嵌入的教育视频和反思练习:对这一新颖的电子学习资源进行系统的调整和优化,旨在为专业人员提供以证据为基础、以理论为驱动的培训资源,以提高其相关性、适宜性和适用性。它具有促进以家庭为中心的癌症临终支持性护理的潜力,最终可促进更好的丧亲结局。需要对干预措施进行评估,以探讨其对实践的影响。
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Adapting and testing an eLearning resource for professionals to support families when a significant caregiver for children is dying with cancer.

Purpose: Health and social care professionals (professionals) often lack knowledge, skills and confidence to support adults at end of life with significant caregiving responsibilities for children, < 18. A recent systematic review highlighted a dearth of educational interventions (n = 2) to equip professionals to provide supportive care to families when a parent has cancer. Addressing an evident gap in education, this paper details the adaption and optimisation of a face-to-face educational intervention to an accessible eLearning resource.

Methods: Guided by the 'Person-based Approach', a theory-driven and evidence-based face-to-face educational intervention was adapted and optimised as an eLearning resource. This incorporated current evidence, alongside insights from an expert group, learning technologists and research team, leading to the design of an eLearning prototype. This was optimised for acceptability and usability using think-aloud interviews with end-users (n = 13) and patient and public involvement (n = 4).

Results: An iterative adaption and optimisation process enabled implementation of navigational improvements, changes to enhance clarity on language and appropriateness of images and interactive components. During optimisation, positive feedback was reported; especially regarding the 'look and feel' and on the educational videos and reflective exercises embedded throughout the eLearning resource.

Conclusion: The systematic adaption and optimisation of this novel eLearning resource has aimed to promote relevance, appropriateness, and applicability of an accessible evidence-based and theory-driven training resource for professionals. It has the potential to promote family-centred supportive end of life cancer care, which ultimately can promote better bereavement outcomes. An evaluation of the intervention is required to explore impact on practice.

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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
期刊最新文献
Communication about incurable illness and remaining life between spouses and patients with incurable illness receiving specialized home care: effects of a family caregiver-targeted web-based psycho-educational intervention. Correction: Adapting the serious illness conversation guide for unhoused older adults: a rapid qualitative study. Online education in palliative care - A national exploratory multimethod study. The family talk intervention prevent the feeling of loneliness - a long term follow up after a parents life-threatening illness. Is the use of antibiotic stewardship measures in the context of specialized outpatient palliative care sensible and feasible? An interview-based study.
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