基于音乐的肿瘤学干预信息的范围、可查找性和质量:国家癌症研究所指定癌症中心面向公众网站的定量内容分析。

IF 3.3 Q2 ONCOLOGY JMIR Cancer Pub Date : 2024-11-22 DOI:10.2196/53440
Carol Ann Blank, Sarah Biedka, Abigail Montalmant, Katelyn Saft, Miranda Lape, Kate Mao, Joke Bradt, Kevin T Liou
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引用次数: 0

摘要

背景:基于音乐的干预(MBI)是一种循证的非药物治疗方法,包括由经委员会认证的音乐治疗师提供的音乐治疗(MT),以及由其他医疗专业人员和志愿者提供的音乐服务(MS)。尽管音乐治疗在癌症症状管理方面的证据基础不断增加,但如何向公众介绍音乐治疗相关信息仍不明确。超过 80% 的癌症患者使用互联网查找健康相关信息。在美国,国家癌症研究所(NCI)将某些癌症中心(CCs)认定为NCI指定癌症中心(CCs)或综合癌症中心(CCCs),这是基于它们在研究方面的卓越表现。由于 NCI 指定的 CC 和 CCC 被认为是癌症治疗的黄金标准,因此它们的网站被公众视为重要的信息来源:我们旨在确定NCI指定的CC/CCCs面向公众的网站上MBI相关信息的范围、可查找性和质量:我们对2022年11月至2023年1月期间的64个NCI指定的CC/CCC网站(不包括基础实验室)进行了审查。我们提取了有关信息范围的数据:(1)提供的 MBI 类型(MT 或 MS),(2)形式(个人、小组),(3)提供方法(当面或远程提供),(4)环境(住院或门诊),(5)目标人群(儿童或成人),(6)MBI 执业者资格,(7)临床适应症或益处,(8)是否有推荐信,(9)成本,以及(10)日程安排或转诊信息。我们还提取了可查找性数据(即是否存在直接链接或下拉菜单,以及查找 MBI 相关信息的点击次数)。在范围和可查找性数据的基础上,我们根据先前的研究采用了一个经过调整的量表,将信息质量分为高、中、低三个等级:在 64 个社区协调中心/社区通信中心中,有 31 个(48%)在其网站上介绍了 MBI。其中,6 家(19%)同时提及 MT 和 MS,16 家(52%)仅提及 MT,9 家(29%)仅提及 MS。最常见的形式是混合式,涉及个人和小组(20 人,占 65%)。最常见的授课方式是面授(16 人,52%)。最常见的目标人群是成年人(12 人,占 39%)。最常见的 MBI 施教者是经委员会认证的音乐治疗师(21 人,68%)。描述最多的适应症或益处是心理方面的。28个网站(90%)缺少推荐信,26个网站(84%)缺少费用信息。26个网站(84%)提供了日程安排或转介信息。MBI相关信息的平均点击次数为4次(SD 1)。9个(29%)网站的质量较高,18个(58%)中等,4个(13%)较低:根据公开网站的信息,最常见的是由经委员会认证的音乐治疗师亲自为门诊和住院的成年人提供 MBI,采用个人和小组的形式提供心理治疗。应提高这些信息的可查找性和质量,以促进用于癌症症状管理的MBI的传播。
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Scope, Findability, and Quality of Information About Music-Based Interventions in Oncology: Quantitative Content Analysis of Public-Facing Websites at National Cancer Institute-Designated Cancer Centers.

Background: Music-based interventions (MBIs) are evidence-based, nonpharmacological treatments that include music therapy (MT) delivered by board-certified music therapists, as well as music services (MS) delivered by other health professionals and volunteers. Despite MBI's growing evidence base in cancer symptom management, it remains unclear how MBI-related information is presented to the public. Over 80% of people with cancer use the internet to find health-related information. In the United States, the National Cancer Institute (NCI) identifies certain Cancer Centers (CCs) as NCI-designated CCs or Comprehensive Cancer Centers (CCCs) based on their excellence in research. As NCI-designated CCs and CCCs are considered the gold standard in cancer care, their websites are viewed by the public as important sources of information.

Objective: We aimed to determine scope, findability, and quality of MBI-related information on public-facing websites of NCI-designated CCs/CCCs.

Methods: We reviewed 64 NCI-designated CC/CCC websites (excluding basic laboratories) between November 2022 and January 2023. We extracted data on the scope of information: (1) type of MBI offered (MT or MS), (2) format (individual, group), (3) method of delivery (in person or remotely delivered), (4) setting (inpatient or outpatient), (5) target population (pediatric or adult), (6) MBI practitioner qualifications, (7) clinical indications or benefits, (8) presence of testimonials, (9) cost, and (10) scheduling or referral information. We also extracted data on findability (ie, presence of direct link or drop-down menu and the number of clicks to locate MBI-related information). Based on the scope and findability data, we rated the information quality as high, moderate, or low using an adapted scale informed by prior research.

Results: Thirty-one (48%) of the 64 CC/CCCs described MBIs on their websites. Of these, 6 (19%) mentioned both MT and MS, 16 (52%) mentioned MT only, and 9 (29%) mentioned MS only. The most common format was hybrid, involving individuals and groups (n=20, 65%). The most common delivery method was in person (n=16, 52%). The most common target population was adults (n=12, 39%). The most common MBI practitioners were board-certified music therapists (n=21, 68%). The most described indications or benefits were psychological. Twenty-eight (90%) websites lacked testimonials, and 26 (84%) lacked cost information. Twenty-six (84%) websites provided scheduling or referral information. MBI-related information was found with an average of 4 (SD 1) clicks. Nine (29%) websites were of high quality, 18 (58%) were moderate, and 4 (13%) were low.

Conclusions: Based on public websites, MBIs were most commonly delivered in person by board-certified music therapists to outpatient and inpatient adults, using individual and group formats to provide psychological benefits. The findability and quality of this information should be improved to promote the dissemination of MBIs for cancer symptom management.

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来源期刊
JMIR Cancer
JMIR Cancer ONCOLOGY-
CiteScore
4.10
自引率
0.00%
发文量
64
审稿时长
12 weeks
期刊最新文献
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