评估青少年慢性病患者转变准备程度的工具:COSMIN测量特性的系统评价

IF 1.8 4区 医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-12-04 DOI:10.1111/cch.70017
Ting Yi, Yiwen Hu, Lin Xia, Yao Zhang, Xuewei Chen, Chaoqun Dong
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引用次数: 0

摘要

转型准备是医疗转型成功的关键预测因素。慢性疾病青少年的转变准备程度评估工具种类繁多,但对工具的系统整合和标准化评估在测量特性方面受到限制,使科学有效和合理的工具的选择复杂化。本综述旨在批判性地评价、比较和总结青少年慢性病患者的过渡准备评估工具。方法对10个数据库自建库至2023年9月3日进行综合检索。采用基于共识的健康测量工具选择标准(COSMIN)系统评价指南来评价患者报告的结果测量方法(PROMs)的质量,并促进推荐最合适的测量工具。结果共检索到1798篇文献,其中74篇入选全文评价。最后,共纳入41篇文章,涉及22个过渡准备评估工具。其中9种评估工具是广义评估工具,13种是针对特定慢性病的评估工具。由于内容效度不充分或不确定,证据质量中等或较低,22种评估工具被推荐为b级。结论本系统综述全面概述了青少年慢性病患者过渡准备评估工具的测量特征,并提出了相应的建议。研究结果表明,没有乐器表现出优于其他乐器的性能。因此,今后的努力应侧重于根据COSMIN准则开发更多的高质量工具,以准确评价这一人群的过渡准备情况。
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Instruments to Assess Transition Readiness Among Adolescents With Chronic Disease: A COSMIN Systematic Review of Measurement Properties

Background

Transition readiness is a key predictor of the success of the medical transition. There are numerous categories of assessment instruments for transition readiness in adolescents with chronic disease, but systematic integration and standardized evaluation of instruments are limited regarding measurement properties, complicating the selection of scientifically valid and reasonable instruments. This review aimed to critically appraise, compare, and summarize the transition readiness assessment instruments in adolescents with chronic diseases.

Methods

A comprehensive search was conducted in 10 databases from their inception to September 3, 2023. The Consensus-based Standards for Selection of Health Measurement Instruments (COSMIN) systematic review guideline was used to evaluate the quality of the Patient-Reported Outcome Measures (PROMs) and to facilitate the recommendation of the most suitable measuring instruments.

Results

The total number of retrieved articles was 1798, out of which 74 were selected for full-text evaluation. Finally, a total of 41 articles were included, involving 22 transition readiness assessment instruments. Nine of the assessment instruments were generalized assessment instruments, whereas 13 were for specific chronic diseases. Because of insufficient or uncertain content validity and moderate or low quality of evidence, the 22 assessment instruments were recommended by grade B.

Conclusions

This systematic review offers a comprehensive overview of the measurement characteristics of the transition readiness assessment instrument for adolescent patients with chronic illnesses, along with corresponding recommendations. The findings indicate that no instrument demonstrated superior performance over others. Consequently, future efforts should focus on developing additional high-quality instruments in accordance with COSMIN guidelines to evaluate transition readiness among this population precisely.

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来源期刊
CiteScore
3.40
自引率
5.30%
发文量
136
审稿时长
4-8 weeks
期刊介绍: Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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