2019年全球疾病负担研究和患者在线支持社区的皮肤病学数据:比较分析

Q3 Medicine JMIR dermatology Pub Date : 2024-12-11 DOI:10.2196/50449
Mindy D Szeto, Lina Alhanshali, Chandler W Rundle, Madeline Adelman, Michelle Hook Sobotka, Emily Woolhiser, Jieying Wu, Colby L Presley, Jalal Maghfour, John Meisenheimer, Jaclyn B Anderson, Robert P Dellavalle
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引用次数: 0

摘要

未标记:全球疾病负担(GBD)研究旨在描述全球主要疾病的患病率和发病率,而PatientsLikeMe (PLM)是一个在线社区,提供患者对生活经历的见解;对于皮肤病,GBD和PLM数据的定量比较揭示了预期的人口统计学差异,但也有显著的相关性,强调了它们作为补充数据源的潜力,阐明了未满足的患者需求和优先事项。
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Dermatologic Data From the Global Burden of Disease Study 2019 and the PatientsLikeMe Online Support Community: Comparative Analysis.

Unlabelled: The Global Burden of Disease (GBD) study aims to characterize the worldwide prevalence and morbidity of major diseases, while PatientsLikeMe (PLM) is an online community providing patient-generated insights into lived experiences; for dermatologic conditions, quantitative comparisons of GBD and PLM data revealed expected demographic differences but also notable correlations, highlighting their potential as complementary data sources elucidating unmet patient needs and priorities.

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1.20
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审稿时长
18 weeks
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