评估美国胰腺移植中心提供的在线信息的可读性和可靠性。

IF 1.9 4区医学 Q2 SURGERY Clinical Transplantation Pub Date : 2024-12-13 DOI:10.1111/ctr.70055

Vincenzo Villani, Kumaran Shanmugarajah

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引用次数: 0

摘要

背景：进行胰腺移植（PTx）的决定是一个复杂的决定，患者教育是重要的，允许移植候选人做出知情和自主的决定。在本研究中，我们评估了美国PTx中心提供的在线信息的可读性和可靠性。方法：检索2022 - 2023年活跃的PTx中心网站，检索胰腺移植患者信息。使用8个经过验证的公式评估可读性。可靠性评估采用美国医学协会杂志的标准。结果：117家PTx中心中，57家提供在线信息资料。与中、小容量中心相比，大容量中心更有可能提供患者信息（分别为76.6%、45.6%和34.6%）。平均阅读能力在11年级及以上，三组之间没有差异（11.9,11.4,11.4）。可靠性很低，只有两个中心提供材料来源的信息。只有一个中心用英语以外的语言提供信息。结论：美国移植中心提供的PTx在线资料的可读性较低，远高于推荐的6级水平。移植中心、国家协会和患者权益组织应合作开发以证据为基础、易于阅读并以多种语言提供的信息材料。

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Evaluating Readability and Reliability of Online Information Provided by Pancreas Transplant Centers in the United States

Background

The decision of proceeding with a pancreas transplant (PTx) is a complex one, and patient education is important to allow transplant candidates to make an informed and autonomous decision. In this study, we assessed the readability and reliability of online information provided by PTx centers in the United States.

Methods

Websites of PTx centers active between 2022 and 2023 were searched for patient information on pancreas transplantation. Readability was assessed using eight validated formulas. Reliability was assessed using the Journal of the American Medical Association criteria.

Results

Of 117 PTx centers, 57 provided online information material. High-volume centers were more likely to provide patient information compared to medium- and low-volume centers (76.6%, 45.6%, 34.6%, respectively). Average readability was at the 11^th grade and beyond, with no difference among the three groups (11.9, 11.4, 11.4). Reliability was low, with two centers providing information on the material sources. Only one center provided information in a language other than English.

Conclusions

Readability of online material on PTx provided by US transplant centers is low, well above the recommended 6^thgrade-level. Transplant centers, national societies and patient advocacy groups should collaborate in developing information material that is evidence-based, easy to read, and available in multiple languages.

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来源期刊

Clinical Transplantation 医学-外科

CiteScore

3.70

自引率

4.80%

发文量

286

审稿时长

2 months

期刊介绍： Clinical Transplantation: The Journal of Clinical and Translational Research aims to serve as a channel of rapid communication for all those involved in the care of patients who require, or have had, organ or tissue transplants, including: kidney, intestine, liver, pancreas, islets, heart, heart valves, lung, bone marrow, cornea, skin, bone, and cartilage, viable or stored. Published monthly, Clinical Transplantation’s scope is focused on the complete spectrum of present transplant therapies, as well as also those that are experimental or may become possible in future. Topics include: Immunology and immunosuppression; Patient preparation; Social, ethical, and psychological issues; Complications, short- and long-term results; Artificial organs; Donation and preservation of organ and tissue; Translational studies; Advances in tissue typing; Updates on transplant pathology;. Clinical and translational studies are particularly welcome, as well as focused reviews. Full-length papers and short communications are invited. Clinical reviews are encouraged, as well as seminal papers in basic science which might lead to immediate clinical application. Prominence is regularly given to the results of cooperative surveys conducted by the organ and tissue transplant registries. Clinical Transplantation: The Journal of Clinical and Translational Research is essential reading for clinicians and researchers in the diverse field of transplantation: surgeons; clinical immunologists; cryobiologists; hematologists; gastroenterologists; hepatologists; pulmonologists; nephrologists; cardiologists; and endocrinologists. It will also be of interest to sociologists, psychologists, research workers, and to all health professionals whose combined efforts will improve the prognosis of transplant recipients.