“当我给他注射胰岛素时,我感到内心的痛苦”:阿拉伯国家1型糖尿病幼儿父母的经历。

IF 1.3 4区 医学 Q3 NURSING Journal of Child Health Care Pub Date : 2024-12-18 DOI:10.1177/13674935241309509
Hala Mahmoud Obeidat, Haytham Mohammad Al-Oran, Ghadeer Hjazeen, Doa'a Abdullah Dwairej, Aseel Hussein Obeidat, Ferdous Hasan Omari, Diana Arabiat
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引用次数: 0

摘要

儿童1型糖尿病是最常见的慢性健康状况之一,需要持续监测和护理。与被诊断患有慢性疾病的儿童生活在一起会影响父母日常生活的多个方面,包括身体、精神和社会方面。由于孩子患有糖尿病,父母在日常生活中可能会遇到许多特殊的困难。本研究描述了父母照顾1型糖尿病儿童的经历。这项研究是基于对10位照顾1型糖尿病儿童的父母的半结构化访谈。我们使用Colaizzi在护理研究中的描述现象学数据分析策略对访谈进行分析。参与者被描述为一个非常具有挑战性的情况,他们需要支持来帮助他们处理具有挑战性的生活情况,特别是在孩子被诊断的头几年。数据中出现了以下主题:适应诊断后的新现实,跟上儿童的治疗方案,心理、社会和经济负担,以及关注并发症。
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"When I gave him the insulin injection, I felt the pain in my heart": Experiences of parents of young children with type 1 diabetes in an Arab country.

Type 1 diabetes mellitus in children is one of the most common chronic health conditions, requiring constant monitoring and care. Living with children who are diagnosed with chronic illness affects multiple aspects of parents' daily lives, including the physical, mental, and social aspects. Due to their child's diabetes, parents may experience many special difficulties with their daily responsibilities. This study describes parental experiences caring for a child with type 1 diabetes. The study was based on semi-structured interviews with 10 parents caring for a child with type 1 diabetes. We analyzed the interviews using Colaizzi's strategy of descriptive phenomenological data analysis in nursing research. Participants were described a profoundly challenging situation, and they were in need of support to help them handle a challenging life situation, especially during the first years of a child's diagnosis. The following themes emerged from the data: adapting to the new reality after diagnosis, keeping up with the child's treatment regimen, psychological, social, and financial burdens, and staying tuned for complications.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
期刊最新文献
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