艾滋病研究中的黑人妇女:交叉性、定位性和我们建立一个公正研究企业的承诺。

Danielle M Campbell, Jamila K Stockman
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引用次数: 0

摘要

美国黑人妇女受人类免疫缺陷病毒(艾滋病毒)的影响不成比例,相对于她们的累积艾滋病毒负担,她们在艾滋病毒临床研究参与者中不太可能被代表。同样,黑人妇女在联邦政府资助的大型艾滋病毒研究组合中所占比例不足。广泛的研究表明,在所有申请者中,黑人申请者和女性申请者从美国国立卫生研究院获得R01级别资助的可能性较小。支持多样化的生物医学研究人员队伍,特别是研究人员-参与者的一致性,已被广泛接受为一项急需的战略,以促进种族和族裔以及性和性别少数群体社区的健康成果。雇用多样化的研究人员的好处包括在历史上被边缘化的人群之间建立信任,并支持调查团队之间的多样化观点。在本文中,我们探讨了黑人女性研究人员在艾滋病毒研究、干预和规划工作的发展和实施中所面临的交叉挑战,其中包括对黑人的看法、艾滋病毒研究的“地盘”、不公平的资助、雇用有生活经验的黑人女性的制度困难,以及研究完成后参与者联系的限制。我们强调拟议的解决办法,以支持在结束艾滋病毒流行方面取得公平、合乎道德和文化上适当的进展,这些解决办法是在黑人妇女独特的交叉身份和经历的背景下提出的。
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Black women in HIV research: Intersectionality, positionality and our commitment to build a just research enterprise.

Black women in the United States are disproportionately affected by human immunodeficiency virus (HIV) and are less likely to be represented among HIV clinical research participants relative to their cumulative HIV burden. Likewise, Black women are underrepresented in large federally funded HIV research portfolios. Extensive research has demonstrated that Black applicants and women applicants are less likely to receive R01 level funding from the National Institutes of Health, among all applicants. Support for a diverse biomedical research workforce, particularly researcher-participant concordance, has been widely accepted as a much-needed strategy to advance health outcomes among racial and ethnic and sex and gender minority communities. The benefits of employing a diverse research workforce include building trust among historically marginalized populations and support for diverse perspectives among investigative teams. In this paper, we explore intersectional challenges specific to Black women researchers in the development and implementation of HIV research, intervention, and programming efforts which include perceptions of Blackness, HIV research "turf," inequitable funding, institutional difficulties hiring Black women with lived experiences, and limitations in participant connectedness following study completion. We emphasize proposed solutions to support equitable, ethical, and culturally appropriate advancements in ending the HIV epidemic which are contextualized within Black women's unique intersectional identities and experiences.

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