医学专业人员对绝症犹太正统派病人的看法和经验。

Moshe C Ornstein, David Harris
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摘要

身患绝症的正统犹太病人有独特的目标和愿望,通常受到哈拉卡(犹太法律和伦理)和文化规范的驱使。我们进行了一项质量改进项目,调查了照顾患有绝症的正统犹太病人的医疗专业人员的基本看法和经验。调查对象包括在重症监护病房(ICU)、肿瘤科或姑息治疗和临终关怀团队中照顾正统犹太病人的医疗保健专业人员。调查的三个主要要素包括受访者的人口统计、多项选择和自由文本部分。共有73名医疗专业人员回应了这项调查。注意到几项重要的发现。与一般人群相比,患有绝症的正统犹太患者更有可能在生命结束时要求采取积极措施,并且不太可能完成高级指令和医疗保健授权书。他们也不总是有拉比权威参与决策。保健专业人员强调,强有力的宗教和社区支持是照顾这一人口的积极因素,并建议医疗队为那些需要拉比参与的病人与拉比当局建立早期和直接的沟通。这些数据为正在进行的下一步工作提供信息,以提高对这些患者及其家属的护理质量。
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Medical Professionals' Perceptions of and Experiences With Terminally Ill Orthodox Jewish Patients.

Orthodox Jewish patients with terminal illnesses have unique goals and desires, often driven by halakha (Jewish law and ethics) and cultural norms. We conducted a quality improvement project investigating the baseline perceptions and experiences of medical professionals who care for Orthodox Jewish patients with terminal illnesses. The survey included health care professionals who cared for Orthodox Jewish patients as part of Intensive Care Unit (ICU), Oncology, or Palliative Care and Hospice teams. The three main elements of the survey included respondent demographics, multiple choice selections, and a free-text section. A total of 73 medical professionals responded to the survey. Several important findings were noted. Compared to the general population, Orthodox Jewish patients with terminal illnesses are more likely to request aggressive measures at end-of-life and are less likely to have completed advanced directives and health care power of attorney documentation. They also do not always have a rabbinic authority involved in decision-making. Health care professionals highlighted strong religious and community support as positive elements of caring for this population and recommend that medical teams establish early and direct communication with rabbinic authorities for those patients for whom a rabbi's involvement is desired. These data inform ongoing next steps to improve the quality of care for these patients and their families.

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