网站父母对孩子慢性下肢疼痛信息的获取:一项定性研究。

IF 3.1 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Patient Education and Counseling Pub Date : 2025-05-01 Epub Date: 2025-01-21 DOI:10.1016/j.pec.2025.108670
Luke M. Davies , Jeremy Lai , Louise Tofts , Daphne Nguyen , Sacha McCulloch , Cylie M. Williams , Verity Pacey
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引用次数: 0

摘要

目的:探讨家长在网站上寻找信息以支持慢性下肢痛患儿的体验,并探讨网站信息的质量。方法:慢性下肢疼痛患儿家长通过Zoom实时搜索网站,并进行半结构化访谈。采访被记录下来,逐字转录,并使用归纳方法进行主题分析。网站由两名审稿人使用健康信息网站评估工具在七个领域进行评估。结果:14名慢性下肢痛患儿家长搜索并浏览了34个网站。确定了四个主题:(i)美学问题;(ii)信任建立信任;(iii)有总比没有好,但永远不够;(iv)改善无障碍环境。9个网站(26% %)被认为质量“好”,25个(74% %)被认为质量“中等”。可读性领域在88 %的网站中获得了最高分,而准确性领域,反映了引用和证据搜索过程,在74 %的网站中获得了最低值。结论:家长通过在线资源获取孩子慢性下肢疼痛的信息是为了获取更深入的信息。虽然家长们发现易于理解的高质量网站,但需要更多反映当前证据的儿科特定资源。
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Websites parents' access for information regarding their child's chronic lower limb pain: A qualitative study

Objective

To explore the parent experience of finding information on websites to support their child with chronic lower limb pain and explore the quality of information available on those websites.

Methods

Parents of children with chronic lower limb pain conducted real-time searching of websites followed by semi-structured interviews via Zoom. Interviews were recorded, transcribed verbatim, and analysed thematically using an inductive approach. Websites were evaluated by two reviewers across seven domains using the Health Information Website Evaluation Tool.

Results

Fourteen parents of children impacted by chronic lower limb pain searched and viewed 34 websites. Four themes were identified: (i) aesthetics matter; (ii) trust builds trust; (iii) something is better than nothing, but it’s never enough; (iv) improving accessibility. Nine websites (26 %) were considered ‘good’ quality and 25 (74 %) were considered ‘moderate’ quality. The Readability domain achieved maximum scores across 88 % of websites, and the Accuracy domain, reflecting referencing and evidence search processes, scored the most minimum scores on 74 % of websites.

Conclusion

Parents accessing online resources for their child's chronic lower limb pain seek accessible and in-depth information. While parents find easy to understand quality websites, there is a need for more paediatric-specific resources that reflect current evidence.
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来源期刊
Patient Education and Counseling
Patient Education and Counseling 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.60
自引率
11.40%
发文量
384
审稿时长
46 days
期刊介绍: Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers and clinicians. The journal seeks to explore and elucidate the educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of organizational issues involved with the delivery of patient education, counseling, health promotion services and training models in improving communication between providers and patients.
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