Women's views about online communities for gestational diabetes mellitus: A qualitative interview study

Problem and background

Gestational diabetes mellitus (GDM) is a common medical complication of pregnancy, and the emerging evidence demonstrates how GDM online communities have a positive impact on promoting self-management and improving outcomes. Further analysis of such groups can increase understanding of how peer support in GDM online communities is enabled and enacted.

Aim

To examine women's experiences of GDM online communities on Facebook, their motivations for participation, and perceptions of dynamics within the community.

Methods

Semi-structured phone interviews were conducted with 28 participants, recruited from an online survey posted in two self-organised Australian GDM Facebook groups.

Results

From our thematic analysis of the interview data, four themes were identified from participants’ views about GDM online communities: ‘A safe community’ encapsulated a desire to be connected with others having similar experiences in a non-judgmental space; ‘A supportive and informative group’ concerned the need for, and giving of, support, and gaining knowledge; ‘An adjunct to healthcare’ referred to participants’ use of GDM online communities to inform their healthcare experiences; and ‘A waiting room’ reflected participants’ continued involvement in GDM online communities, in part due to future uncertainty.

Discussion and Conclusion

Our findings affirm the value of GDM online communities on Facebook for community, support and information. GDM online communities serve as an adjunct to formal healthcare, augmenting clinic-based appointments and clinical management of GDM, encouraging informed decision-making and self-advocacy. We highlight how, in such spaces, women collaboratively navigate self-management and healthcare.