西班牙裔和拉丁裔社区成员对人工智能移动医疗工具的看法:定性焦点小组研究。

IF 6 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Journal of Medical Internet Research Pub Date : 2025-02-06 DOI:10.2196/59817
Stephanie A Kraft, Shaan Chopra, Miriana C Duran, Janet A Rojina, Abril Beretta, Katherine I López, Russell Javan, Benjamin S Wilfond, Margaret Rosenfeld, James Fogarty, Linda K Ko
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引用次数: 0

摘要

背景:移动医疗(mHealth)工具有可能减轻严重影响西班牙裔和拉丁裔社区的慢性病负担;然而,在获取和使用卫生技术方面的数字鸿沟表明,移动医疗有可能加剧而不是缩小这些差距。目标:开发可获得和可用的卫生技术的关键步骤是了解社区成员的观点和需求,以便使技术与文化相关并适当地结合背景。在本研究中,我们旨在研究华盛顿州西班牙裔和拉丁裔社区成员对移动医疗的看法。方法:我们招募了讲英语和西班牙语的西班牙裔或拉丁裔成年人,通过华盛顿州农村和城市地区现有的社区网络参与基于网络的焦点小组。焦点小组包括介绍研究小组开发的叙述性幻灯片材料,这些材料描述了儿童哮喘和老年人跌倒风险的移动健康用例。焦点小组问题要求参与者对案例示例做出回应,并进一步探讨移动医疗的使用偏好、好处、障碍和关注点。焦点小组的录音由专业人员誊写,西班牙语笔录被翻译成英语。我们使用演绎法和归纳法开发了一个定性密码本,然后使用恒定比较法编码去识别转录本。分析小组根据对编码数据的审查提出主题,这些主题通过与服务于该地区拉丁裔个人的社区咨询委员会的成员核对来验证,并通过与整个研究团队的讨论最终确定。结果:在2023年5月至9月期间,我们用英语或西班牙语对48名参与者进行了8次焦点小组讨论。焦点小组按语言和地区分层,包括:西班牙城市组3人(n=18, 38%),西班牙农村组2人(n=14, 29%),英国城市组1人(n=6, 13%),英国农村组2人(n=10, 21%)。我们确定了以下七个主题:(1)移动医疗被视为有利于促进健康和心灵安宁;(2)有些人不知道、不熟悉或不适应技术,可能会从个性化支持中受益;(3)资金障碍限制了移动医疗的使用;(4)实际考虑为在日常生活中使用移动医疗创造了障碍;(5)移动医疗引发了对技术过度依赖的担忧;(6)自动化移动医疗功能被认为是有价值的,但不可靠,需要人工输入以确保准确性;(7)数据共享被认为在有限的用途上有价值,但引发了隐私问题。这些主题说明了社区可能面临的移动医疗效益的主要障碍,提供了移动医疗在家庭中的作用的见解,并检查了数据共享和隐私保护的适当平衡。结论:这些发现提供了重要的见解,可以帮助推动响应社区价值观和优先事项的移动医疗的发展。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study.

Background: Mobile health (mHealth) tools have the potential to reduce the burden of chronic conditions that disproportionately affect Hispanic and Latinx communities; however, digital divides in the access to and use of health technology suggest that mHealth has the potential to exacerbate, rather than reduce, these disparities.

Objective: A key step toward developing health technology that is accessible and usable is to understand community member perspectives and needs so that technology is culturally relevant and appropriately contextualized. In this study, we aimed to examine the perspectives of Hispanic and Latinx community members in Washington State about mHealth.

Methods: We recruited English- and Spanish-speaking Hispanic or Latinx adults to participate in web-based focus groups through existing community-based networks across rural and urban regions of Washington State. Focus groups included a presentation of narrative slideshow materials developed by the research team depicting mHealth use case examples of asthma in children and fall risk in older adults. Focus group questions asked participants to respond to the case examples and to further explore mHealth use preferences, benefits, barriers, and concerns. Focus group recordings were professionally transcribed, and Spanish transcripts were translated into English. We developed a qualitative codebook using deductive and inductive methods and then coded deidentified transcripts using the constant comparison method. The analysis team proposed themes based on review of coded data, which were validated through member checking with a community advisory board serving Latino individuals in the region and finalized through discussion with the entire research team.

Results: Between May and September 2023, we conducted 8 focus groups in English or Spanish with 48 participants. Focus groups were stratified by language and region and included the following: 3 (n=18, 38% participants) Spanish urban groups, 2 (n=14, 29% participants) Spanish rural groups, 1 (n=6, 13% participants) English urban group, and 2 (n=10, 21% participants) English rural groups. We identified the following seven themes: (1) mHealth is seen as beneficial for promoting health and peace of mind; (2) some are unaware of, unfamiliar with, or uncomfortable with technology and may benefit from individualized support; (3) financial barriers limit access to mHealth; (4) practical considerations create barriers to using mHealth in daily life; (5) mHealth raises concern for overreliance on technology; (6) automated mHealth features are perceived as valuable but fallible, requiring human input to ensure accuracy; and (7) data sharing is seen as valuable for limited uses but raises privacy concerns. These themes illustrate key barriers to the benefits of mHealth that communities may face, provide insights into the role of mHealth within families, and examine the appropriate balance of data sharing and privacy protections.

Conclusions: These findings offer important insights that can help advance the development of mHealth that responds to community values and priorities.

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来源期刊
CiteScore
14.40
自引率
5.40%
发文量
654
审稿时长
1 months
期刊介绍: The Journal of Medical Internet Research (JMIR) is a highly respected publication in the field of health informatics and health services. With a founding date in 1999, JMIR has been a pioneer in the field for over two decades. As a leader in the industry, the journal focuses on digital health, data science, health informatics, and emerging technologies for health, medicine, and biomedical research. It is recognized as a top publication in these disciplines, ranking in the first quartile (Q1) by Impact Factor. Notably, JMIR holds the prestigious position of being ranked #1 on Google Scholar within the "Medical Informatics" discipline.
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