{"title":"慢性病患儿母亲照顾负担与适应行为的关系","authors":"Zahra Hosseini Chirani , Moluk Pouralizadeh , Yasaman Yaghobi , Ehsan Kazemnejad Leili","doi":"10.1016/j.pedn.2025.02.007","DOIUrl":null,"url":null,"abstract":"<div><h3>Introduction</h3><div>Mothers of children with chronic diseases, as the main caregivers, face the care burden. The care burden of mothers can affect their adaptive behaviors and lead to the use of inappropriate adaptive behaviors. This study was conducted to determine the relationship between the caregiving burden and adaptive behaviors of mothers of children with chronic diseases.</div></div><div><h3>Methods</h3><div>In this descriptive-analytical cross-sectional study, 238 mothers of children with chronic diseases participated by the convenience sampling method. Data collection tools included a demographic information questionnaire, a zarit care burden questionnaire, and a health matching questionnaire for parents. Data were analyzed using descriptive statistics, <em>t</em>-test, ANOVA, and Pearson analysis in SPSS software version 26.</div></div><div><h3>Results</h3><div>The majority of mothers had a mean age of 34.6 ± 7.6 years. The caregiving burden on the mothers of children with chronic diseases was high (21.95 ± 7.76) and most of the mothers had favorable adaptive behaviors in facing their child's illness (95.14 ± 17.15). The most intensity of the significant correlation was in the pattern of “family integrity and optimization of the situation” (<em>P</em> < 0.001, <em>r</em> = −0.434). The mother's illness (<em>P</em> = 0.009, β = 2.874), care of the child with chronic disease only by the mother (<em>P</em> = 0.008, β = 3.142), and immunodeficiency disease of the child (<em>P</em> = 0.021, β = 4.456) positively predicted the caregiving burden.</div></div><div><h3>Conclusion</h3><div>These findings help healthcare systems plan supportive and educational programs for decreasing the caregiving burden and increasing adaptive behaviors in mothers of children with chronic diseases.</div></div><div><h3>Lay summary</h3><div>A cross-sectional study was conducted to determine care burden and adaptive behaviors in mothers with chronically ill children. The results showed that mothers' care burden was high and significantly related to their behavior and adaptation. Mothers had favorable adaptive behaviors.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e113-e120"},"PeriodicalIF":2.3000,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Relationship of caregiving burden and adaptive behaviors in mothers of children with chronic diseases\",\"authors\":\"Zahra Hosseini Chirani , Moluk Pouralizadeh , Yasaman Yaghobi , Ehsan Kazemnejad Leili\",\"doi\":\"10.1016/j.pedn.2025.02.007\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Introduction</h3><div>Mothers of children with chronic diseases, as the main caregivers, face the care burden. The care burden of mothers can affect their adaptive behaviors and lead to the use of inappropriate adaptive behaviors. This study was conducted to determine the relationship between the caregiving burden and adaptive behaviors of mothers of children with chronic diseases.</div></div><div><h3>Methods</h3><div>In this descriptive-analytical cross-sectional study, 238 mothers of children with chronic diseases participated by the convenience sampling method. Data collection tools included a demographic information questionnaire, a zarit care burden questionnaire, and a health matching questionnaire for parents. Data were analyzed using descriptive statistics, <em>t</em>-test, ANOVA, and Pearson analysis in SPSS software version 26.</div></div><div><h3>Results</h3><div>The majority of mothers had a mean age of 34.6 ± 7.6 years. The caregiving burden on the mothers of children with chronic diseases was high (21.95 ± 7.76) and most of the mothers had favorable adaptive behaviors in facing their child's illness (95.14 ± 17.15). The most intensity of the significant correlation was in the pattern of “family integrity and optimization of the situation” (<em>P</em> < 0.001, <em>r</em> = −0.434). The mother's illness (<em>P</em> = 0.009, β = 2.874), care of the child with chronic disease only by the mother (<em>P</em> = 0.008, β = 3.142), and immunodeficiency disease of the child (<em>P</em> = 0.021, β = 4.456) positively predicted the caregiving burden.</div></div><div><h3>Conclusion</h3><div>These findings help healthcare systems plan supportive and educational programs for decreasing the caregiving burden and increasing adaptive behaviors in mothers of children with chronic diseases.</div></div><div><h3>Lay summary</h3><div>A cross-sectional study was conducted to determine care burden and adaptive behaviors in mothers with chronically ill children. The results showed that mothers' care burden was high and significantly related to their behavior and adaptation. Mothers had favorable adaptive behaviors.</div></div>\",\"PeriodicalId\":48899,\"journal\":{\"name\":\"Journal of Pediatric Nursing-Nursing Care of Children & Families\",\"volume\":\"81 \",\"pages\":\"Pages e113-e120\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-03-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Nursing-Nursing Care of Children & Families\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0882596325000533\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/2/17 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Nursing-Nursing Care of Children & Families","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0882596325000533","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/2/17 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
Relationship of caregiving burden and adaptive behaviors in mothers of children with chronic diseases
Introduction
Mothers of children with chronic diseases, as the main caregivers, face the care burden. The care burden of mothers can affect their adaptive behaviors and lead to the use of inappropriate adaptive behaviors. This study was conducted to determine the relationship between the caregiving burden and adaptive behaviors of mothers of children with chronic diseases.
Methods
In this descriptive-analytical cross-sectional study, 238 mothers of children with chronic diseases participated by the convenience sampling method. Data collection tools included a demographic information questionnaire, a zarit care burden questionnaire, and a health matching questionnaire for parents. Data were analyzed using descriptive statistics, t-test, ANOVA, and Pearson analysis in SPSS software version 26.
Results
The majority of mothers had a mean age of 34.6 ± 7.6 years. The caregiving burden on the mothers of children with chronic diseases was high (21.95 ± 7.76) and most of the mothers had favorable adaptive behaviors in facing their child's illness (95.14 ± 17.15). The most intensity of the significant correlation was in the pattern of “family integrity and optimization of the situation” (P < 0.001, r = −0.434). The mother's illness (P = 0.009, β = 2.874), care of the child with chronic disease only by the mother (P = 0.008, β = 3.142), and immunodeficiency disease of the child (P = 0.021, β = 4.456) positively predicted the caregiving burden.
Conclusion
These findings help healthcare systems plan supportive and educational programs for decreasing the caregiving burden and increasing adaptive behaviors in mothers of children with chronic diseases.
Lay summary
A cross-sectional study was conducted to determine care burden and adaptive behaviors in mothers with chronically ill children. The results showed that mothers' care burden was high and significantly related to their behavior and adaptation. Mothers had favorable adaptive behaviors.
期刊介绍：
Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS)
The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief.
Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.
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