授权卫生保健行为者促进实施卫生数据集成平台:回顾medEmotion项目。

IF 6 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Journal of Medical Internet Research Pub Date : 2025-03-04 DOI:10.2196/68083
Marcel Parciak, Noëlla Pierlet, Liesbet M Peeters
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引用次数: 0

摘要

健康数据集成平台对于推动协作、跨学科医学研究项目至关重要。开发这样一个平台需要来自不同利益相关者的投入。管理这些涉众和指导平台开发是具有挑战性的,并且将平台与合作伙伴的策略不一致可能导致最终平台的接受度较低。我们提出了medEmotion项目,这是来自卫生保健、学术界和工业界的7个合作伙伴共同努力的成果,旨在为比利时林堡地区开发一个卫生数据集成平台。我们专注于开发过程和利益相关者的参与,旨在根据我们对medEmotion的反思,为类似的未来努力提供实用的建议。我们引入角色来解释涉众扮演的不同角色,以及总结角色对平台的需求的演示者。角色和演示者都有两个目的。首先,它们用于定义medEmotion平台的技术需求。其次,它们代表了一种简化所有利益相关者之间讨论的沟通工具。基于角色和演示,我们介绍了基于Microsoft Azure云组件的medEmotion平台。演示基于真实世界的用例,展示了平台的实用性。我们对medEmotion的发展过程进行反思,从中提炼出对未来项目有帮助的信息。投资于社区建设、利益攸关方参与和教育对于构建卫生数据集成平台的生态系统至关重要。而不是学术主导的项目,卫生保健提供者自己理想地推动卫生保健提供者之间的合作。提供者最适合解决医院的具体要求,而学者则扮演中立的调解人角色。这也包括构思阶段,在此阶段确保所有利益相关者的参与至关重要。最后,平衡创新与实施是开发创新但可持续的卫生数据集成平台的关键。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Empowering Health Care Actors to Contribute to the Implementation of Health Data Integration Platforms: Retrospective of the medEmotion Project.

Health data integration platforms are vital to drive collaborative, interdisciplinary medical research projects. Developing such a platform requires input from different stakeholders. Managing these stakeholders and steering platform development is challenging, and misaligning the platform to the partners' strategies might lead to a low acceptance of the final platform. We present the medEmotion project, a collaborative effort among 7 partners from health care, academia, and industry to develop a health data integration platform for the region of Limburg in Belgium. We focus on the development process and stakeholder engagement, aiming to give practical advice for similar future efforts based on our reflections on medEmotion. We introduce Personas to paraphrase different roles that stakeholders take and Demonstrators that summarize personas' requirements with respect to the platform. Both the personas and the demonstrators serve 2 purposes. First, they are used to define technical requirements for the medEmotion platform. Second, they represent a communication vehicle that simplifies discussions among all stakeholders. Based on the personas and demonstrators, we present the medEmotion platform based on components from the Microsoft Azure cloud. The demonstrators are based on real-world use cases and showcase the utility of the platform. We reflect on the development process of medEmotion and distill takeaway messages that will be helpful for future projects. Investing in community building, stakeholder engagement, and education is vital to building an ecosystem for a health data integration platform. Instead of academic-led projects, the health care providers themselves ideally drive collaboration among health care providers. The providers are best positioned to address hospital-specific requirements, while academics take a neutral mediator role. This also includes the ideation phase, where it is vital to ensure the involvement of all stakeholders. Finally, balancing innovation with implementation is key to developing an innovative yet sustainable health data integration platform.

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来源期刊
CiteScore
14.40
自引率
5.40%
发文量
654
审稿时长
1 months
期刊介绍: The Journal of Medical Internet Research (JMIR) is a highly respected publication in the field of health informatics and health services. With a founding date in 1999, JMIR has been a pioneer in the field for over two decades. As a leader in the industry, the journal focuses on digital health, data science, health informatics, and emerging technologies for health, medicine, and biomedical research. It is recognized as a top publication in these disciplines, ranking in the first quartile (Q1) by Impact Factor. Notably, JMIR holds the prestigious position of being ranked #1 on Google Scholar within the "Medical Informatics" discipline.
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