土耳其语版AWESCORE测验的效度和信度。

IF 2.3 Q3 PEDIATRICS Turkish archives of pediatrics Pub Date : 2025-03-03 DOI:10.5152/TurkArchPediatr.2025.24199
Burak Yıldız, Özge Keniş-Coşkun, Tuğçe Kızıltepe, Evrim Karadağ-Saygı, Pınar Ergenekon, Ela Erdem-Eralp, Yasemin Gökdemir, Bülent Karadağ
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摘要

目的:患者报告的生活质量(QoL)测量是与患者一致做出临床决策的关键。目前囊性纤维化(CF)的金标准是囊性纤维化问卷修订(CFQ-R),它对不同年龄组有不同的应用,需要一个计算机程序进行评估。需要一种直接的方法来评估儿童和成人CF患者的生活质量。本研究旨在建立土耳其版阿尔弗雷德健康评分(AWESCORE)测试的有效性和可靠性,该测试已开发用于评估CF患者的生活质量。材料和方法:本研究是一项方法学研究。AWESCORE表格被翻译成土耳其语,适用于10岁以上的患者。它包括10个问题。每个问题都使用0-10的数字评分量表进行评分。总分从0到100分不等。在24小时内评估重测信度。为了确定有效性,比较了病情稳定的受试者和肺恶化的受试者,以及AWESCORE和CFQ-R之间的差异。结果:共纳入99例患者,其中29例处于急性加重期(29%)。所有问题的类内相关系数(ICC)均在0.9以上,信度极佳。临床稳定期评分高于肺加重期(平均±SD): 79.35±6.51比41.93±8.58 (P < 0.001)。所有问题在急性加重期均显著变差,每个问题的P值均低于0.001,显示出极好的效度。结论:土耳其版AWESCORE在评估CF患者生活质量方面是有效和可靠的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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The Validity and Reliability of the Turkish Version of the AWESCORE Test.

Objective: Patient-reported quality of life (QoL) measurement is crucial in making clinical decisions in unison with the patients. The current gold standard for cystic fibrosis (CF) is the Cystic Fibrosis Questionnaire-Revised (CFQ-R), which has different applications for different age groups and requires a computer program to be evaluated. There is a need for a straightforward way to evaluate QoL in both pediatric and adult patients with CF. The study aims to establish the validity and reliability of the Turkish version of the Alfred Wellness Score (AWESCORE) test that has been developed to evaluate QoL in patients with CF. Materials and Methods: This study is a methodological study. The AWESCORE form was translated into Turkish and was applied to patients above 10 years of age. It includes 10 questions. Each question was scored using a numerical rating scale of 0-10. Total scores ranged from 0 to 100. Test-retest reliability was assessed over 24 hours. To determine validity, comparisons were sought between stable subjects and those in pulmonary exacerbation, and between AWESCORE and CFQ-R. Results: A total of 99 patients were included, 29 of whom were during their acute exacerbation period (29%). All questions showed intraclass correlation coefficient (ICC) values above 0.9, indicating excellent reliability. Scores were higher during clinical stability compared to pulmonary exacerbation (mean ± SD): 79.35 ± 6.51 versus 41.93 ± 8.58 (P < .001). All questions were significantly worse in the acute exacerbation period, showing excellent validity with P values below .001 for each question. Conclusion: The Turkish version of the AWESCORE is valid and reliable in its ability to evaluate QoL in patients with CF.

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