{"title":"“我不想被评判”:青少年2型糖尿病患者生活经历的定性研究。","authors":"Gitanjali Subramani, Alexia S Peña, Melissa Oxlad","doi":"10.1016/j.jcjd.2025.03.007","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>Our aim in this study was to explore adolescents' experiences of type 2 diabetes (T2D), particularly those concerning 1) diagnosis and management and 2) emotional well-being.</p><p><strong>Methods: </strong>Participants, recruited from an Australian tertiary pediatric hospital, took part in a focus group or semistructured interview. Data were analyzed using inductive thematic analysis.</p><p><strong>Results: </strong>Eight adolescents participated in the study (7 female youths and 1 male youth; mean ± standard deviation age: 16.2±2.3 years; median [interquartile range] diabetes duration: 1.7 [0.8 to 2.5] years; glycated hemoglobin: 7.5% [6.2% to 8.4%]; and body mass index z score: 1.97 [0.70 to 2.29]). Most participants (n=6) were from linguistically diverse backgrounds. Their diabetes management varied from lifestyle measures alone to medication(s). The thematic analysis generated 3 themes relating to diagnosis and management: 1) \"Dietary modification as the biggest encumbrance in managing T2D\"; 2) \"Medications pose a significant challenge to managing T2D\"; and 3) \"The value of reminders in managing T2D varies in adolescents.\" Furthermore, 4 themes were generated concerning emotional well-being: 1) \"Diverse feelings are experienced at the time of diagnosis\"; 2) \"Diabetes has varying impacts on the daily lives of adolescents with T2D\"; 3) \"Young people fear stigma and judgement\"; and 4) \"Having a good support network matters.\"</p><p><strong>Conclusions: </strong>Adolescents with T2D experience difficulties with dietary modification and medication management. Adolescents' feelings at diagnosis and the impact of T2D on a young person's life vary. They fear judgement and stigma, and a diverse support network is paramount in supporting their T2D management and emotional well-being. The findings can assist health professionals in supporting adolescents with T2D.</p>","PeriodicalId":93918,"journal":{"name":"Canadian journal of diabetes","volume":" ","pages":"271-278"},"PeriodicalIF":2.6000,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"I Don't Want to Feel Judged\\\": A Qualitative Study of Adolescents' Experiences of Living With Type 2 Diabetes.\",\"authors\":\"Gitanjali Subramani, Alexia S Peña, Melissa Oxlad\",\"doi\":\"10.1016/j.jcjd.2025.03.007\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>Our aim in this study was to explore adolescents' experiences of type 2 diabetes (T2D), particularly those concerning 1) diagnosis and management and 2) emotional well-being.</p><p><strong>Methods: </strong>Participants, recruited from an Australian tertiary pediatric hospital, took part in a focus group or semistructured interview. Data were analyzed using inductive thematic analysis.</p><p><strong>Results: </strong>Eight adolescents participated in the study (7 female youths and 1 male youth; mean ± standard deviation age: 16.2±2.3 years; median [interquartile range] diabetes duration: 1.7 [0.8 to 2.5] years; glycated hemoglobin: 7.5% [6.2% to 8.4%]; and body mass index z score: 1.97 [0.70 to 2.29]). Most participants (n=6) were from linguistically diverse backgrounds. Their diabetes management varied from lifestyle measures alone to medication(s). The thematic analysis generated 3 themes relating to diagnosis and management: 1) \\\"Dietary modification as the biggest encumbrance in managing T2D\\\"; 2) \\\"Medications pose a significant challenge to managing T2D\\\"; and 3) \\\"The value of reminders in managing T2D varies in adolescents.\\\" Furthermore, 4 themes were generated concerning emotional well-being: 1) \\\"Diverse feelings are experienced at the time of diagnosis\\\"; 2) \\\"Diabetes has varying impacts on the daily lives of adolescents with T2D\\\"; 3) \\\"Young people fear stigma and judgement\\\"; and 4) \\\"Having a good support network matters.\\\"</p><p><strong>Conclusions: </strong>Adolescents with T2D experience difficulties with dietary modification and medication management. Adolescents' feelings at diagnosis and the impact of T2D on a young person's life vary. They fear judgement and stigma, and a diverse support network is paramount in supporting their T2D management and emotional well-being. The findings can assist health professionals in supporting adolescents with T2D.</p>\",\"PeriodicalId\":93918,\"journal\":{\"name\":\"Canadian journal of diabetes\",\"volume\":\" \",\"pages\":\"271-278\"},\"PeriodicalIF\":2.6000,\"publicationDate\":\"2025-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Canadian journal of diabetes\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1016/j.jcjd.2025.03.007\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/4/4 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian journal of diabetes","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1016/j.jcjd.2025.03.007","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/4/4 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
"I Don't Want to Feel Judged": A Qualitative Study of Adolescents' Experiences of Living With Type 2 Diabetes.
Objectives: Our aim in this study was to explore adolescents' experiences of type 2 diabetes (T2D), particularly those concerning 1) diagnosis and management and 2) emotional well-being.
Methods: Participants, recruited from an Australian tertiary pediatric hospital, took part in a focus group or semistructured interview. Data were analyzed using inductive thematic analysis.
Results: Eight adolescents participated in the study (7 female youths and 1 male youth; mean ± standard deviation age: 16.2±2.3 years; median [interquartile range] diabetes duration: 1.7 [0.8 to 2.5] years; glycated hemoglobin: 7.5% [6.2% to 8.4%]; and body mass index z score: 1.97 [0.70 to 2.29]). Most participants (n=6) were from linguistically diverse backgrounds. Their diabetes management varied from lifestyle measures alone to medication(s). The thematic analysis generated 3 themes relating to diagnosis and management: 1) "Dietary modification as the biggest encumbrance in managing T2D"; 2) "Medications pose a significant challenge to managing T2D"; and 3) "The value of reminders in managing T2D varies in adolescents." Furthermore, 4 themes were generated concerning emotional well-being: 1) "Diverse feelings are experienced at the time of diagnosis"; 2) "Diabetes has varying impacts on the daily lives of adolescents with T2D"; 3) "Young people fear stigma and judgement"; and 4) "Having a good support network matters."
Conclusions: Adolescents with T2D experience difficulties with dietary modification and medication management. Adolescents' feelings at diagnosis and the impact of T2D on a young person's life vary. They fear judgement and stigma, and a diverse support network is paramount in supporting their T2D management and emotional well-being. The findings can assist health professionals in supporting adolescents with T2D.