“我不想被评判”:青少年2型糖尿病患者生活经历的定性研究。

IF 2.6 Canadian journal of diabetes Pub Date : 2025-06-01 Epub Date: 2025-04-04 DOI:10.1016/j.jcjd.2025.03.007
Gitanjali Subramani, Alexia S Peña, Melissa Oxlad
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引用次数: 0

摘要

目的:探讨青少年T2D的经历,特别是关于(1)诊断和管理以及(2)情绪健康。方法:参与者从澳大利亚一家三级儿科医院招募,参加焦点小组或半结构化访谈。数据分析采用归纳专题分析。结果:8名青少年(7名女性,1名男性)(平均±SD年龄16.2±2.3岁,糖尿病病程中位数[IQR]为1.7[0.8-2.5]年,HbA1c为7.5[6.2-8.4]%,体重指数(Z-score)为1.97[0.70-2.29])。大多数参与者(n = 6)来自不同的语言背景。他们的糖尿病管理从单独的生活方式措施到药物治疗各不相同。专题分析产生了与诊断和管理相关的三个主题:(1)“饮食改变是管理T2D的最大障碍”,(2)“药物对控制T2D构成了重大挑战”,以及(3)“提醒在青少年T2D管理中的价值各不相同。此外,还产生了四个与情绪健康相关的主题:(1)“在诊断的时候会有不同的感受”,(2)“糖尿病对青少年T2D患者的日常生活有不同的影响”,(3)“年轻人害怕耻辱和评判”,以及(4)“拥有良好的支持网络很重要。”结论:青少年T2D患者在饮食调整和药物管理方面存在困难。青少年在诊断时的感受和T2D对年轻人生活的影响各不相同。他们害怕评判和耻辱,一个多样化的支持网络对于支持他们的T2D管理和情感健康至关重要。研究结果可以帮助卫生专业人员支持青少年T2D。
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"I Don't Want to Feel Judged": A Qualitative Study of Adolescents' Experiences of Living With Type 2 Diabetes.

Objectives: Our aim in this study was to explore adolescents' experiences of type 2 diabetes (T2D), particularly those concerning 1) diagnosis and management and 2) emotional well-being.

Methods: Participants, recruited from an Australian tertiary pediatric hospital, took part in a focus group or semistructured interview. Data were analyzed using inductive thematic analysis.

Results: Eight adolescents participated in the study (7 female youths and 1 male youth; mean ± standard deviation age: 16.2±2.3 years; median [interquartile range] diabetes duration: 1.7 [0.8 to 2.5] years; glycated hemoglobin: 7.5% [6.2% to 8.4%]; and body mass index z score: 1.97 [0.70 to 2.29]). Most participants (n=6) were from linguistically diverse backgrounds. Their diabetes management varied from lifestyle measures alone to medication(s). The thematic analysis generated 3 themes relating to diagnosis and management: 1) "Dietary modification as the biggest encumbrance in managing T2D"; 2) "Medications pose a significant challenge to managing T2D"; and 3) "The value of reminders in managing T2D varies in adolescents." Furthermore, 4 themes were generated concerning emotional well-being: 1) "Diverse feelings are experienced at the time of diagnosis"; 2) "Diabetes has varying impacts on the daily lives of adolescents with T2D"; 3) "Young people fear stigma and judgement"; and 4) "Having a good support network matters."

Conclusions: Adolescents with T2D experience difficulties with dietary modification and medication management. Adolescents' feelings at diagnosis and the impact of T2D on a young person's life vary. They fear judgement and stigma, and a diverse support network is paramount in supporting their T2D management and emotional well-being. The findings can assist health professionals in supporting adolescents with T2D.

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