M I Fitch, R E Gray, D DePetrillo, E Franssen, D Howell
{"title":"加拿大妇女对卵巢癌的看法。","authors":"M I Fitch, R E Gray, D DePetrillo, E Franssen, D Howell","doi":"","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To describe the perspectives of Canadian women living with ovarian cancer regarding their experiences with the disease.</p><p><strong>Design: </strong>A cross-sectional survey of a convenience sample of Canadian women with ovarian cancer.</p><p><strong>Setting: </strong>Survey questionnaires were sent to physicians in 26 cancer programs that treat women with ovarian cancer and to ovarian cancer self-help groups for subsequent distribution to women.</p><p><strong>Participants: </strong>Women diagnosed with ovarian cancer and able to read English or French.</p><p><strong>Main outcome measures: </strong>A variety of individual items in the survey related to information received, communication, physical and psychosocial symptoms, impact of illness and quality of life.</p><p><strong>Results: </strong>A total of 315 women returned the survey. The average age of the respondents is 59 years. Each province and territory is represented in the sample. Over one-half of the women received a diagnosis of ovarian cancer within a month of seeking help for a concern and 85% had multiple treatment modalities. The majority of the women felt adequately informed (80%) and were satisfied with communication with their physicians (mean of 4.1 to 4.5 on a 5-point scale). A majority (62%) said that their lifestyle had changed as a result of their disease. Problems were experienced most frequently regarding side effects (58%), fear of recurrence (54%), sleeping difficulties (46%), bowel difficulties (44%), fear of dying (36%) and difficulty concentrating (32%). Many who experienced problems reported receiving inadequate help for them (16% to 49%). Quality of life was reported as significantly lower following the diagnosis and treatment of ovarian cancer (p = 0.0001).</p><p><strong>Conclusion: </strong>This study provides an important foundation for further investigation. There is a pressing need for research regarding the early identification of ovarian cancer and issues of support and coping. Care for women with ovarian cancer requires the expertise of a range of disciplines and community-based agencies working collaboratively as a team.</p>","PeriodicalId":79570,"journal":{"name":"Cancer prevention & control : CPC = Prevention & controle en cancerologie : PCC","volume":"3 1","pages":"52-60"},"PeriodicalIF":0.0000,"publicationDate":"1999-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Canadian women's perspectives on ovarian cancer.\",\"authors\":\"M I Fitch, R E Gray, D DePetrillo, E Franssen, D Howell\",\"doi\":\"\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To describe the perspectives of Canadian women living with ovarian cancer regarding their experiences with the disease.</p><p><strong>Design: </strong>A cross-sectional survey of a convenience sample of Canadian women with ovarian cancer.</p><p><strong>Setting: </strong>Survey questionnaires were sent to physicians in 26 cancer programs that treat women with ovarian cancer and to ovarian cancer self-help groups for subsequent distribution to women.</p><p><strong>Participants: </strong>Women diagnosed with ovarian cancer and able to read English or French.</p><p><strong>Main outcome measures: </strong>A variety of individual items in the survey related to information received, communication, physical and psychosocial symptoms, impact of illness and quality of life.</p><p><strong>Results: </strong>A total of 315 women returned the survey. The average age of the respondents is 59 years. Each province and territory is represented in the sample. Over one-half of the women received a diagnosis of ovarian cancer within a month of seeking help for a concern and 85% had multiple treatment modalities. The majority of the women felt adequately informed (80%) and were satisfied with communication with their physicians (mean of 4.1 to 4.5 on a 5-point scale). A majority (62%) said that their lifestyle had changed as a result of their disease. Problems were experienced most frequently regarding side effects (58%), fear of recurrence (54%), sleeping difficulties (46%), bowel difficulties (44%), fear of dying (36%) and difficulty concentrating (32%). Many who experienced problems reported receiving inadequate help for them (16% to 49%). Quality of life was reported as significantly lower following the diagnosis and treatment of ovarian cancer (p = 0.0001).</p><p><strong>Conclusion: </strong>This study provides an important foundation for further investigation. There is a pressing need for research regarding the early identification of ovarian cancer and issues of support and coping. Care for women with ovarian cancer requires the expertise of a range of disciplines and community-based agencies working collaboratively as a team.</p>\",\"PeriodicalId\":79570,\"journal\":{\"name\":\"Cancer prevention & control : CPC = Prevention & controle en cancerologie : PCC\",\"volume\":\"3 1\",\"pages\":\"52-60\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"1999-02-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Cancer prevention & control : CPC = Prevention & controle en cancerologie : PCC\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Cancer prevention & control : CPC = Prevention & controle en cancerologie : PCC","FirstCategoryId":"1085","ListUrlMain":"","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Objective: To describe the perspectives of Canadian women living with ovarian cancer regarding their experiences with the disease.
Design: A cross-sectional survey of a convenience sample of Canadian women with ovarian cancer.
Setting: Survey questionnaires were sent to physicians in 26 cancer programs that treat women with ovarian cancer and to ovarian cancer self-help groups for subsequent distribution to women.
Participants: Women diagnosed with ovarian cancer and able to read English or French.
Main outcome measures: A variety of individual items in the survey related to information received, communication, physical and psychosocial symptoms, impact of illness and quality of life.
Results: A total of 315 women returned the survey. The average age of the respondents is 59 years. Each province and territory is represented in the sample. Over one-half of the women received a diagnosis of ovarian cancer within a month of seeking help for a concern and 85% had multiple treatment modalities. The majority of the women felt adequately informed (80%) and were satisfied with communication with their physicians (mean of 4.1 to 4.5 on a 5-point scale). A majority (62%) said that their lifestyle had changed as a result of their disease. Problems were experienced most frequently regarding side effects (58%), fear of recurrence (54%), sleeping difficulties (46%), bowel difficulties (44%), fear of dying (36%) and difficulty concentrating (32%). Many who experienced problems reported receiving inadequate help for them (16% to 49%). Quality of life was reported as significantly lower following the diagnosis and treatment of ovarian cancer (p = 0.0001).
Conclusion: This study provides an important foundation for further investigation. There is a pressing need for research regarding the early identification of ovarian cancer and issues of support and coping. Care for women with ovarian cancer requires the expertise of a range of disciplines and community-based agencies working collaboratively as a team.
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