Marieke Van Schoors, Laura Sels, Liesbet Goubert, Lesley L Verhofstadt
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Siblings Dealing with Pediatric Cancer: A Family- and Context-oriented Approach.
Background: Pediatric cancer is a severe life-threatening disease that poses significant challenges to the life of the siblings. Based on the social ecology model, the current study is aimed at exploring the association between intrafamilial (family functioning, family support) and contextual (network support) resources, and the individual adjustment of siblings facing cancer in their brother/sister. Methods: Participants were 81 siblings of children with leukemia or non-Hodgkin lymphoma. The mean siblings' age was 10.32 years. Siblings completed the Family Environment Scale, the Social Support Questionnaire for Children, the Situation-Specific Emotional Reactions Questionnaire, and the Pediatric Quality of Life Inventory. Data were analyzed using a multi-level approach. Results: Family functioning, family support, and network support proved to be related to siblings' cancer-related emotional reactions post-diagnosis. In addition, the present study suggests taking into account the gender of the ill child and the age of the siblings. Discussion: Our findings led to the conclusion that resources at both the intrafamilial level and the contextual level are important for explaining sibling adjustment post-diagnosis. Interventions targeting the sibling, the family, and the external network are warranted to enhance sibling adjustment.
期刊介绍:
SPECIAL PATIENTS NEED SPECIAL NURSES
Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing.
The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care.
Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include:
Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis
Combination therapies
Hematologic and immunologic topics
Holistic, family-centered supportive care
Improvement of quality of life for children and adolescents with cancer
Management of side effects from surgery, chemotherapy, and radiation
Management of specific symptoms/diseases/co-infections
Medication tolerance differences in children and adolescents
Pain control
Palliative and end of life care issues
Pharmacologic agents for pediatrics/clinical trial results
Psychological support for the patient, siblings, and families
The dynamic articles cover a wide range of specific nursing concerns, including:
Advanced practice issues
Clinical issues
Clinical proficiency
Conducting qualitative and quantitative research
Developing a core curriculum for pediatric hematology/oncology nursing
Encouraging active patient participation
Ethical issues
Evaluating outcomes
Professional development
Stress management and handling your own emotions
Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference.
Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today!
This journal is a member of the Committee on Publication Ethics (COPE).