处理儿童癌症的兄弟姐妹:一个家庭和环境为导向的方法。

IF 1.9 3区 医学 Q2 NURSING Journal of Pediatric Oncology Nursing Pub Date : 2021-05-01 Epub Date: 2021-04-01 DOI:10.1177/1043454221992303
Marieke Van Schoors, Laura Sels, Liesbet Goubert, Lesley L Verhofstadt
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引用次数: 1

摘要

背景:儿童癌症是一种严重危及生命的疾病,对兄弟姐妹的生活构成重大挑战。基于社会生态学模型,本研究旨在探讨家庭内部(家庭功能、家庭支持)和环境(网络支持)资源与兄弟姐妹面临癌症的个体适应之间的关系。方法:参与者为81例白血病或非霍奇金淋巴瘤患儿的兄弟姐妹。兄弟姐妹平均年龄为10.32岁。兄弟姐妹完成家庭环境量表、儿童社会支持问卷、情境特定情绪反应问卷和儿童生活质量量表。数据分析采用多层次的方法。结果:家庭功能、家庭支持和网络支持与兄弟姐妹诊断后的癌症相关情绪反应有关。此外,本研究建议考虑患病儿童的性别和兄弟姐妹的年龄。讨论:我们的研究结果得出结论,家庭内部水平和环境水平的资源对于解释诊断后的兄弟姐妹适应很重要。针对兄弟姐妹、家庭和外部网络的干预是必要的,以加强兄弟姐妹的适应。
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Siblings Dealing with Pediatric Cancer: A Family- and Context-oriented Approach.

Background: Pediatric cancer is a severe life-threatening disease that poses significant challenges to the life of the siblings. Based on the social ecology model, the current study is aimed at exploring the association between intrafamilial (family functioning, family support) and contextual (network support) resources, and the individual adjustment of siblings facing cancer in their brother/sister. Methods: Participants were 81 siblings of children with leukemia or non-Hodgkin lymphoma. The mean siblings' age was 10.32 years. Siblings completed the Family Environment Scale, the Social Support Questionnaire for Children, the Situation-Specific Emotional Reactions Questionnaire, and the Pediatric Quality of Life Inventory. Data were analyzed using a multi-level approach. Results: Family functioning, family support, and network support proved to be related to siblings' cancer-related emotional reactions post-diagnosis. In addition, the present study suggests taking into account the gender of the ill child and the age of the siblings. Discussion: Our findings led to the conclusion that resources at both the intrafamilial level and the contextual level are important for explaining sibling adjustment post-diagnosis. Interventions targeting the sibling, the family, and the external network are warranted to enhance sibling adjustment.

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来源期刊
CiteScore
3.10
自引率
0.00%
发文量
0
审稿时长
>12 weeks
期刊介绍: SPECIAL PATIENTS NEED SPECIAL NURSES Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing. The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care. Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include: Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis Combination therapies Hematologic and immunologic topics Holistic, family-centered supportive care Improvement of quality of life for children and adolescents with cancer Management of side effects from surgery, chemotherapy, and radiation Management of specific symptoms/diseases/co-infections Medication tolerance differences in children and adolescents Pain control Palliative and end of life care issues Pharmacologic agents for pediatrics/clinical trial results Psychological support for the patient, siblings, and families The dynamic articles cover a wide range of specific nursing concerns, including: Advanced practice issues Clinical issues Clinical proficiency Conducting qualitative and quantitative research Developing a core curriculum for pediatric hematology/oncology nursing Encouraging active patient participation Ethical issues Evaluating outcomes Professional development Stress management and handling your own emotions Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference. Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today! This journal is a member of the Committee on Publication Ethics (COPE).
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