向服务不足的神经肿瘤人群提供公平的护理。

Alyx B Porter, Ugonma N Chukwueke, Aaron G Mammoser, Bret Friday, Shawn Hervey-Jumper
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引用次数: 5

摘要

人们普遍认为,亚专科多学科治疗可改善神经肿瘤预后。优化患者预后依赖于治疗医师、神经放射学和神经病理学的专业知识,以及熟悉脑肿瘤诊断和治疗后常见神经系统综合征的支持性服务。尽管越来越多的提供者,病人获得专业的多学科护理和临床试验仍然有限。美国各地都存在妨碍公平医疗保健的障碍,边缘化社区受到的影响尤为严重。这种差异导致来自不同背景的患者的发病率和死亡率增加。对这种不平等的关注有限,导致了对神经肿瘤疾病患者所遇到的各种经历的不完全理解。临床试验代表了医学护理的最高标准和质量,但对代表性不足和服务不足群体的纳入始终落后于多数种族和族裔群体的对应参与者。通过提供者教育,从偏见和健康素养到增加临床试验登记和通过远程医疗提供机会,探索改善获得高质量神经肿瘤学护理的机会。
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Delivering Equitable Care to Underserved Neuro-oncology Populations.

It is widely recognized that subspecialized multidisciplinary care improves neuro-oncology outcomes. Optimizing patient outcomes relies on the expertise of the treating physicians, neuroradiology and neuropathology, and supportive services familiar with common neurologic syndromes that occur after brain tumor diagnosis and treatment. Despite an increasing number of providers, patient access to specialized multidisciplinary care and clinical trials remains limited. Barriers to equitable health care exist across the United States, with marginalized communities being impacted disproportionately. Such disparity causes increased morbidity and mortality for patients from backgrounds with various elements of diversity. Limited attention to this inequity has resulted in an incomplete understanding of the spectrum of experiences that patients with neuro-oncologic diseases encounter. Clinical trials represent the highest standard and quality of care in medicine, but inclusion of under-represented and underserved groups consistently lags behind counterpart participants from majority racial and ethnic groups. Through provider education as it pertains to issues from bias and health literacy to increasing clinical trial enrollment and offering opportunities through telemedicine, opportunities for improving access to high-quality neuro-oncologic care are explored.

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期刊介绍: The Ed Book is a National Library of Medicine–indexed collection of articles written by ASCO Annual Meeting faculty and invited leaders in oncology. Ed Book was launched in 1985 to highlight standards of care and inspire future therapeutic possibilities in oncology. Published annually, each volume highlights the most compelling research and developments across the multidisciplinary fields of oncology and serves as an enduring scholarly resource for all members of the cancer care team long after the Meeting concludes. These articles address issues in the following areas, among others: Immuno-oncology, Surgical, radiation, and medical oncology, Clinical informatics and quality of care, Global health, Survivorship.
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