Marie-Luise Manow, Nesrin Paulsen, Meike Rybczynski, Thomas Mir, Alexander M J Bernhardt, Hendrik Treede, Gunda Ohm, Bettina Fuisting, Uwe Rehder, Florian Meier, Marina Vogler, Thomas Meinertz, Karin Overlack, Yskert von Kodolitsch
{"title":"[新的德国法律指令启动后马凡氏病患者门诊护理的成本和利润分析(116 b SGB V)]。","authors":"Marie-Luise Manow, Nesrin Paulsen, Meike Rybczynski, Thomas Mir, Alexander M J Bernhardt, Hendrik Treede, Gunda Ohm, Bettina Fuisting, Uwe Rehder, Florian Meier, Marina Vogler, Thomas Meinertz, Karin Overlack, Yskert von Kodolitsch","doi":"10.1007/s00063-010-1090-y","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The Marfan syndrome is a typical rare disease with multiorgan involvement and the need for specialized interdisciplinary medical care. A novel German legal directive according to section sign 116 b of the Social Statutes Book V (116 b SGB V) improves options for reimbursement and thus encourages specialized hospitals to provide ambulatory care for rare diseases such as Marfan syndrome. The authors provide the first economic analysis of section sign 116 b in a German Marfan center.</p><p><strong>Methods: </strong>The costs were assessed in 184 cases with Marfan syndrome receiving medical care in the Hamburg Marfan Clinic. The authors assessed the financial profit both according to payments received from invoices established according to the 116 b directive [reimbursement (116b)] and from calculations according to section sign 117 SGB V [reimbursement (117)].</p><p><strong>Results: </strong>A total of 117 patients traveled to the Marfan clinic (64%) < 50 km, 27 patients (15%) between >or= 50 and <or= 100 km, and 40 patients (22%) > 100 km. The total costs for ambulatory care were 71,606.28 Euro. The reimbursement (116b) was 55,549.87 Euro and the reimbursement (117) was 11,776.00 Euro.</p><p><strong>Conclusion: </strong>Many patients accept long distances of traveling to receive specialized ambulatory medical care. However, for optimal patient management specialized centers need to cooperate intensively with local health care providers. The novel legal directive according to section sign 116 b has significantly improved reimbursement for Marfan centers and allows for improving the quality of medical care.</p>","PeriodicalId":18420,"journal":{"name":"Medizinische Klinik","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2010-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/s00063-010-1090-y","citationCount":"8","resultStr":"{\"title\":\"[Analysis of costs and profits of ambulatory care of Marfan patients after initiation of a novel German legal directive (116 b SGB V)].\",\"authors\":\"Marie-Luise Manow, Nesrin Paulsen, Meike Rybczynski, Thomas Mir, Alexander M J Bernhardt, Hendrik Treede, Gunda Ohm, Bettina Fuisting, Uwe Rehder, Florian Meier, Marina Vogler, Thomas Meinertz, Karin Overlack, Yskert von Kodolitsch\",\"doi\":\"10.1007/s00063-010-1090-y\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The Marfan syndrome is a typical rare disease with multiorgan involvement and the need for specialized interdisciplinary medical care. A novel German legal directive according to section sign 116 b of the Social Statutes Book V (116 b SGB V) improves options for reimbursement and thus encourages specialized hospitals to provide ambulatory care for rare diseases such as Marfan syndrome. The authors provide the first economic analysis of section sign 116 b in a German Marfan center.</p><p><strong>Methods: </strong>The costs were assessed in 184 cases with Marfan syndrome receiving medical care in the Hamburg Marfan Clinic. The authors assessed the financial profit both according to payments received from invoices established according to the 116 b directive [reimbursement (116b)] and from calculations according to section sign 117 SGB V [reimbursement (117)].</p><p><strong>Results: </strong>A total of 117 patients traveled to the Marfan clinic (64%) < 50 km, 27 patients (15%) between >or= 50 and <or= 100 km, and 40 patients (22%) > 100 km. The total costs for ambulatory care were 71,606.28 Euro. The reimbursement (116b) was 55,549.87 Euro and the reimbursement (117) was 11,776.00 Euro.</p><p><strong>Conclusion: </strong>Many patients accept long distances of traveling to receive specialized ambulatory medical care. However, for optimal patient management specialized centers need to cooperate intensively with local health care providers. The novel legal directive according to section sign 116 b has significantly improved reimbursement for Marfan centers and allows for improving the quality of medical care.</p>\",\"PeriodicalId\":18420,\"journal\":{\"name\":\"Medizinische Klinik\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2010-08-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1007/s00063-010-1090-y\",\"citationCount\":\"8\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medizinische Klinik\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1007/s00063-010-1090-y\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2010/9/8 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medizinische Klinik","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1007/s00063-010-1090-y","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2010/9/8 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 8
摘要
背景:马凡氏综合征是一种典型的罕见的多器官累及疾病,需要专业的跨学科医疗护理。根据《社会法规》第五卷第116 b节(116 b SGB V),一项新的德国法律指令改善了报销选择,从而鼓励专科医院为马凡综合征等罕见疾病提供门诊护理。作者首次对德国马凡中心1116b路段进行了经济分析。方法:对184例在汉堡马凡氏门诊就诊的马凡氏综合征患者进行费用评估。作者根据根据1116b指令[报销(116b)]建立的发票所收到的款项和根据SGB V[报销(117)]节标志117的计算来评估财务利润。结果:共有117例患者(64%)到马凡诊所的路程< 50公里,27例患者(15%)在>或= 50至100公里之间。门诊护理的总费用为71,606.28欧元。偿还额(116b)为55,549.87欧元,偿还额(117)为11,776.00欧元。结论:许多患者愿意长途旅行接受专科门诊治疗。然而,为了优化患者管理,专业中心需要与当地卫生保健提供者密切合作。根据第116 b节的新法律指示,大大改善了对马凡中心的报销,并允许提高医疗保健的质量。
[Analysis of costs and profits of ambulatory care of Marfan patients after initiation of a novel German legal directive (116 b SGB V)].
Background: The Marfan syndrome is a typical rare disease with multiorgan involvement and the need for specialized interdisciplinary medical care. A novel German legal directive according to section sign 116 b of the Social Statutes Book V (116 b SGB V) improves options for reimbursement and thus encourages specialized hospitals to provide ambulatory care for rare diseases such as Marfan syndrome. The authors provide the first economic analysis of section sign 116 b in a German Marfan center.
Methods: The costs were assessed in 184 cases with Marfan syndrome receiving medical care in the Hamburg Marfan Clinic. The authors assessed the financial profit both according to payments received from invoices established according to the 116 b directive [reimbursement (116b)] and from calculations according to section sign 117 SGB V [reimbursement (117)].
Results: A total of 117 patients traveled to the Marfan clinic (64%) < 50 km, 27 patients (15%) between >or= 50 and 100 km. The total costs for ambulatory care were 71,606.28 Euro. The reimbursement (116b) was 55,549.87 Euro and the reimbursement (117) was 11,776.00 Euro.
Conclusion: Many patients accept long distances of traveling to receive specialized ambulatory medical care. However, for optimal patient management specialized centers need to cooperate intensively with local health care providers. The novel legal directive according to section sign 116 b has significantly improved reimbursement for Marfan centers and allows for improving the quality of medical care.