在成人和儿童姑息治疗项目中支持儿童的悲伤。

S Lawrence Librach, Heather O'Brien
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引用次数: 13

摘要

“孩子们怎么办?”是照顾濒临死亡的儿童/青少年的人最关心的问题。这个问题所包含的担忧和恐惧可能会压倒照顾者,因为他们投入了大量的精力来试图保护儿童/青少年免受等待他们的苦难和痛苦。也许这些照顾者必须学会的最艰难的一课是,他们无法保护他们的孩子/青少年免受死亡的影响,就像他们无法阻止死亡的发生一样。相反,儿童/青少年最需要的是包括、准备和提供一个安全的地方来表达情感。儿童和成年人一样,会以他们自己的特定方式悲伤,受他们的发育水平、疾病和死亡的情况以及他们可以获得的保护因素的影响。为照顾儿童/青少年的姑息治疗患者提供全面的全人护理应包括心理教育和对所有家庭成员的支持。我们社区失去亲人的儿童/青年一生中会受到家人死亡的无数方面的影响。作为照顾濒死之人的专业人士,我们有责任尽我们所能来调解这种影响。
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Supporting children's grief within an adult and pediatric palliative care program.

"What about the kids?" is a dominant and consuming question for caregivers supporting children/youth around the dying and death of a family member. The concerns and fears encompassed in this question can overwhelm caregivers as they put vast amounts of energy into trying to protect children/youth from the suffering and pain that awaits them. Perhaps the hardest lesson these caregivers must learn is that they cannot protect their child/youth from the death any more than they can stop the death from happening. Instead, what is needed most from children/youth is to be included, prepared, and provided with a safe place for emotional expression. Children, as well as adults, will grieve in their own specific way, mediated by their developmental level, circumstances of the illness and death, and protective factors available to them. Providing comprehensive, whole-person care to palliative patients with children/youth in their care ought to include psychoeducation and support for all members of the family. Our communities' bereaved children/youth will be impacted by the death of their family members in countless ways throughout their lives. As professionals caring for people who are dying, we have a responsibility to mediate this impact to the best of our ability.

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