公共利益与私人利益之间的生物库:以脐带血私人生物库为例。

Maurizio Onisto, Viviana Ananian, Luciana Caenazzo
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引用次数: 3

摘要

人类生物样本和与之相关的个人资料都储存在生物银行中。尽管医学界对生物银行抱有期望,但它们的管理涉及一些伦理问题,例如,需要制定政策来规范经济利益、数据(包括专利)的潜在商业用途、私营部门融资、样本所有权和利益分享。在为公共利益做出贡献的背景下,我们可以将向生物银行提供生物材料的行为视为捐赠,在这种捐赠中,捐赠构成了广义互惠形式的一部分,在这种互惠形式中,捐赠行为有助于社会的共同利益。从这个角度出发,我们进入了一个以个人使用的脐带血生物库为代表的不同情况。我们用私人脐带血生物库的例子来说明,在社会共同利益的背景下,在私人生物库中收集和保存脐带血供个人使用的限制性效用。总之,以团结为基础的系统似乎能够保证向生物库捐赠生物材料的必要供应水平。
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Biobanks between common good and private interest: the example of umbilical cord blood private biobanks.

Storage of human biological samples and personal data associated with them is organised in Biobanks. In spite of expectation given by biobanks in medicine, their management involved some ethical questions, for example, the need for policies to regulate economic interests, potential commercial use of data (including patents), private sector financing, ownership of samples and benefit sharing. In the context of contributing to the general public interest, we can consider the act of giving biological material to biobanks as a donation, in which the donation constitutes part of a generalised form of reciprocity in which the act of donation contributes to society's common good. Starting from this perspective, we move into a different situation represented by the biobanking of umbilical cord blood for personal use. We used the example of the private biobanking of umbilical cords to demonstrate the restrictive utility of the collection and preservation of cord blood for personal use in private biobanks, in the context of society's common good. In summary, a system based on solidarity seems to be able to guarantee necessary levels of supply for the donation of biological material to biobanks.

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