西班牙人口初级保健数据库(SIDIAP)中选择高质量数据的评分系统的构建和验证。

M Del Mar García-Gil, Eduardo Hermosilla, Daniel Prieto-Alhambra, Francesc Fina, Magdalena Rosell, Rafel Ramos, Jordi Rodriguez, Tim Williams, Tjeerd Van Staa, Bonaventura Bolíbar
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引用次数: 223

摘要

背景:计算机化的初级保健临床记录数据库被广泛用于流行病学研究。在加泰罗尼亚,初级保健研究发展信息系统(SIDIAP)旨在促进基于初级保健电子医疗记录的高质量有效数据的研究发展。目的:本研究的目的是创建并验证一个评分系统(注册质量评分,RQS),该评分系统将使所有初级保健实践(pcp)能够根据其登记册的完整性被选择为可研究数据的提供者。方法:选择在初级保健中可能具有代表性的常见诊断的疾病进行RQS计算。计算每种疾病的观察/预期病例比。一旦我们获得了每个选定条件下该比率的估计值,我们将每个条件下计算的比率相加,以获得最终的RQS。RQS计算中未包括的疾病(心房纤颤、糖尿病、肥胖、精神分裂症、中风、尿失禁和克罗恩病)的观察和公布的患病率之间的比率比较用于设置RQS截止值,这将使研究人员能够选择具有研究可用数据的pcp。结果:除克罗恩病外,所有的患病率与RQS第四个五分位数(第60百分位)之后公布的患病率相同。这个RQS截止点提供了1 936 443人(占SIDIAP总人口的39.6%)。结论:SIDIAP在地理、年龄和性别分布方面具有高度代表性。我们报告了比率比较作为在初级保健电子病历中建立研究可用数据的有效方法的有效性。
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Construction and validation of a scoring system for the selection of high-quality data in a Spanish population primary care database (SIDIAP).

Background: Computerised databases of primary care clinical records are widely used for epidemiological research. In Catalonia, the Information System for the Development of Research in Primary Care (SIDIAP) aims to promote the development of research based on high-quality validated data from primary care electronic medical records.

Objective: The purpose of this study is to create and validate a scoring system (Registry Quality Score, RQS) that will enable all primary care practices (PCPs) to be selected as providers of researchusable data based on the completeness of their registers.

Methods: Diseases that were likely to be representative of common diagnoses seen in primary care were selected for RQS calculations. The observed/expected cases ratio was calculated for each disease. Once we had obtained an estimated value for this ratio for each of the selected conditions we added up the ratios calculated for each condition to obtain a final RQS. Rate comparisons between observed and published prevalences of diseases not included in the RQS calculations (atrial fibrillation, diabetes, obesity, schizophrenia, stroke, urinary incontinence and Crohn's disease) were used to set the RQS cutoff which will enable researchers to select PCPs with research-usable data.

Results: Apart from Crohn's disease, all prevalences were the same as those published from the RQS fourth quintile (60th percentile) onwards. This RQS cut-off provided a total population of 1 936 443 (39.6% of the total SIDIAP population).

Conclusions: SIDIAP is highly representative of the population of Catalonia in terms of geographical, age and sex distributions. We report the usefulness of rate comparison as a valid method to establish research-usable data within primary care electronic medical records.

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