与青少年和年轻人一起工作,以支持过渡。

Endocrine development Pub Date : 2014-01-01 Epub Date: 2014-09-09 DOI:10.1159/000363637
Helena Gleeson, Amy B Wisniewski
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引用次数: 14

摘要

医疗保健的转变是一个多方面的积极过程,在青少年和年轻人从以儿童为中心的保健转向以成人为中心的保健时,它照顾到他们的医疗、社会心理、教育和职业需要。从儿科向成人服务的过渡被认为是对患有性发育障碍的年轻人持续护理的重要组成部分,就像对所有患有慢性疾病的年轻人一样。有证据表明,医学界未能安全地将患有DSD的年轻人转移,其结果是年轻人失去了照顾,没有得到适当的服务,无法进入成年期。为了更有效地支持过渡,医疗保健专业人员应提供与发育相适应的护理。要做到这一点,医疗保健专业人员必须了解、认识和解决年轻人普遍面临的现实生活挑战,以及患有DSD的具体挑战。儿科和成人服务、个人保健专业人员、年轻人及其家庭之间的沟通是成功过渡护理的必要条件。
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Working with adolescents and young adults to support transition.

Transition of medical care is a multifaceted, active process that attends to the medical, psychosocial, educational and vocational needs of adolescents and young adults as they move from child- to adult-centred care. Transition from paediatric to adult services is recognized as an important part of continuous care for young people with disorders of sex development (DSD), just as it is for all young people affected by chronic medical conditions. There is evidence that the medical community is failing to transition young people with DSD safely, the result being that young people are lost to care and not receiving appropriate services into adulthood. To support transition more effectively, healthcare professionals should provide developmentally appropriate care. To accomplish this, healthcare professionals must understand, recognize and address the real-life challenges faced by young people in general, as well as those challenges specific to having DSD. Communication between paediatric and adult services, individual healthcare professionals, young people and their families is necessary for the successful transition of care.

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